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$3900 is still too much. I got quote of $8701 from SilverScript. LAUSD is changing me from Anthem Blue Cross ($50/mo reasonable) to Medicare Part D with SilverS Jan 2016. plans are supposed to be comparable. However I got SS quote on "Chat"and was only able to ask about cost.couldn’t type fast enough to explain anything. cant phone cause I cant speak how I hate this -----Original Message----- From: Trauti Boyd Sent: Tuesday, October 27, 2015 3:50 PM To: [log in to unmask] Subject: Re: $10,000 a month for Nilotinib i will ask at our next appointment - so far i have not received an answer to the email i sent to my husband's neurologist. the drug is available in canada for $3900/month. with the reduced dosage given in the trial that should provide 3 months of off-label use. i strongly doubt off-label use would be covered by insurance here and if it did it probably would cost just about that much. tier 4 - non-preferred brands - usually carries a 40% co-payment ... trauti ----- Original Message ----- From: "Robin Ruth" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, October 26, 2015 9:10 PM Subject: Re: $10,000 a month for Nilotinib > The cost of the drug aside, has anyone looked into the possibility of > getting Nilotinib prescribed off-label for Parkinson's? > Robin Ruth > > Sent from my iPhone > >> On Oct 25, 2015, at 8:06 PM, Rayilyn Brown <[log in to unmask]> wrote: >> >> a letter to Novartis from my good friend Ordell Nelson: >> >> -----Original Message----- From: Ordell Nelson Sent: Sunday, October 25, >> 2015 11:47 AM To: [log in to unmask] Subject: $10,000 >> a month for Nilotinib >> Dear Ms. Scott: >> >> It is indeed wonderful news that Nilotinib will dramatically reduce the >> symptoms of Parkinson's disease. Congratulations for being at the helm of >> this exciting venture. >> >> In contrast, it's horrendous news that you intend to charge Americans >> $125,000 per year for this drug. As you probably know better than >> anybody, Pharma notoriously price gouges Americans. Study after study has >> shown that Americans are victims of Pharma's absurd prices. >> >> Should this be news to you, I'm glad to provide "A Brief Guide to Big >> Pharma" at http://theweek.com/articles/583337/brief-guide-big-pharma >> >> Step aside from your Pharma pack, and take leadership with pricing >> Nilotinib. Please offer Nilotinib for an affordable price. How about $1 >> per pill? >> >> With hope, >> Ordell Nelson >> >> >> >> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn