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I saw my  neuro and the Director of the Movement Disorder Program at the Cleo Roberts Center for Clinical Research today and  learned

“Dr. Moussa and colleagues are now planning a double-blind, placebo controlled phase 2  clinical trial testing nilotinib in patients with PD and other neurodegenerative diseases (including   Alzheimer’s disease).  The  study is likely to begin in 2016.”

“The phase 1 study received philanthropic funding and  was supported by the  Georgetown-Howard Universities  Center for Clinical and Transitional Science.  Dr.  Charbel Moussa is an inventor on a Georgetown University  patent application for use of nilotinib and other tyrosine kinase inhibitors for the treatment of neurodegenerative diseases.  Colleague Dr. Fernando Pagan has disclosed no relevant financial relationships.’


Director explained to  me that because of patent, others cannot do trials without Moussa/Georgetown approval.  He will see Moussa this  month and relay my appeal for more trials, hopefully at the Barrow in Phoenix or the Cleo in  Sun CIty.    

email  Dr. Charbel Moussa at this  site.  you  have  to fill out form giving your email, his is not shown.  I emailed him but am too tired to keep  looking for snail mail address now.  I think Tony Adler has it.

http://contact.georgetown.edu/mail/
phone 1-202-687-7328 if you can speak

Both  neuros  will keep  me Informed, so we should know  more  soon.

PS- I donated my brain to brain bank

Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation

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