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Who really knows? She had what we called "toe curl" for which we went to Podiatrists for about three years to no avail until somebody sent her to a neurologist to check for Parkinson's. First one said, "you don't have PD, quit wasting my time!". 2nd one prescribed Requip, 12 a day, in Jan 2004, then switched to Sinemet after a couple of months, and THEN decided she had PD! So short answer, probably 15 years. Interestingly, the earliest diagnosis was probably when the Medical Group she worked for (as a Clinical Lab Scientist, doing lab work for cancer patients) couldn't read her handwriting! And speaking of Botox, she just had a Botox treatment for her hand, which was curled inward, and it has relieved that symptom somewhat. We're trying to get back in for the same treatment for her feet. -----Original Message----- >From: Rayilyn Brown <[log in to unmask]> >Sent: Jan 1, 2016 11:09 PM >To: John <[log in to unmask]>, parkinsn <[log in to unmask]> >Subject: Re: L-dopa debate > >how long has Sue had PD? > >-----Original Message----- >From: John >Sent: Friday, January 01, 2016 1:33 PM >To: [log in to unmask] >Subject: Re: L-dopa debate > >I don't think Sue has really on/off times as I hear about with PD. She has >bad Dystonia in both feet and hands, can't walk. Her on times are when she >is just feeling OK overall, otherwise has anxiety attacks and upset stomach, >etc. Very frustrating. > >John > > >-----Original Message----- >>From: Rayilyn Brown <[log in to unmask]> >>Sent: Dec 31, 2015 9:32 AM >>To: John <[log in to unmask]>, parkinsn <[log in to unmask]> >>Subject: Re: L-dopa debate >> >>true nothing new in a long time. Question - when u r " on" r u back 2 >>normal 4 awhile or just a little better? I can never tell. But I take >>Rytary anyway >> >>-----Original Message----- >>From: John >>Sent: Wednesday, December 30, 2015 12:47 PM >>To: [log in to unmask] >>Subject: Re: L-dopa debate >> >>Or, "nothing much new has happened lately for Parkinson's" >> >>Interestingly, I started to use Rytary's concept for my wife, Sue, long >>before the drug came out. We've been combining 1/2 of a 25/100 Sinemet with >>a 50/200 ER pill with some success in smoothing out the 'on' times. >> >>John >> >>-----Original Message----- >>>From: Rayilyn Brown <[log in to unmask]> >>>Sent: Dec 29, 2015 4:06 PM >>>To: [log in to unmask] >>>Subject: L-dopa debate >>> >>>http://www.medpagetoday.com/Neurology/ParkinsonsDisease/55449 >>>Ray >>>Rayilyn Brown >>>Past Director AZNPF >>>Arizona Chapter National Parkinson Foundation >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn >> > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn