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I don't think Sue has really on/off times as I hear about with PD. She has bad Dystonia in both feet and hands, can't walk. Her on times are when she is just feeling OK overall, otherwise has anxiety attacks and upset stomach, etc. Very frustrating.

John


-----Original Message-----
>From: Rayilyn Brown <[log in to unmask]>
>Sent: Dec 31, 2015 9:32 AM
>To: John <[log in to unmask]>, parkinsn <[log in to unmask]>
>Subject: Re: L-dopa debate
>
>true nothing new in a long time.  Question - when u r  " on" r u back 2 
>normal 4 awhile or just a little better?  I can never tell.   But I take 
>Rytary anyway
>
>-----Original Message----- 
>From: John
>Sent: Wednesday, December 30, 2015 12:47 PM
>To: [log in to unmask]
>Subject: Re: L-dopa debate
>
>Or, "nothing much new has happened lately for Parkinson's"
>
>Interestingly, I started to use Rytary's concept for my wife, Sue, long 
>before the drug came out. We've been combining 1/2 of a 25/100 Sinemet with 
>a 50/200 ER pill with some success in smoothing out the 'on' times.
>
>John
>
>-----Original Message-----
>>From: Rayilyn Brown <[log in to unmask]>
>>Sent: Dec 29, 2015 4:06 PM
>>To: [log in to unmask]
>>Subject: L-dopa debate
>>
>>http://www.medpagetoday.com/Neurology/ParkinsonsDisease/55449
>>Ray
>>Rayilyn Brown
>>Past Director AZNPF
>>Arizona Chapter National Parkinson Foundation
>>
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