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How awful it would be to find that yes, there is a significant benefit and no, sorry--you can't afford it. On Monday, January 18, 2016, Trauti Boyd <[log in to unmask]> wrote: > that's one of the problems my husband's neuro mentioned - not knowing what > tests need to be run to stay on top of this.:( > canada has nilotinib for about 3k/month but at the reduced dosage for > parkinson's that would be enough for 3 months - long enough imo to find out > if there really is a benefit. > > that brings me to another point brought up here on the list - dr hickey > also mentioned that the placebo effect can be very drastic for pd! > > ----- Original Message ----- From: "Nick" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, January 17, 2016 7:47 PM > Subject: nilotinib > > > I' going to contact a medical lawyer and see what he thinks. Sue them for >> violating 'do no harm'. Or maybe a strongly worded hold harmless document >> to protect the neuro's butt. >> >> I will also contact my primary care doc, a very nice Indian doc, to see >> if she would run all the tests needed if I got a prescription (Mexico? >> Canada?) >> >> Nick >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn