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that's one of the problems my husband's neuro mentioned - not knowing what 
tests need to be run to stay on top of this.:(
canada has nilotinib for about 3k/month but at the reduced dosage for 
parkinson's that would be enough for 3 months - long enough imo to find out 
if there really is a benefit.

that brings me to another point brought up here on the list - dr hickey also 
mentioned that the placebo effect can be very drastic for pd!

----- Original Message ----- 
From: "Nick" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 17, 2016 7:47 PM
Subject: nilotinib


> I' going to contact a medical lawyer and see what he thinks. Sue them for 
> violating 'do no harm'. Or maybe a strongly worded hold harmless document 
> to protect the neuro's butt.
>
> I will also contact my primary care doc, a very nice Indian doc, to see if 
> she would run all the tests needed if I got a prescription (Mexico? 
> Canada?)
>
> Nick
>
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