Print

Print


Really, I agree with you 100%. It frustrates the hell out of me and makes
me not want to hear anything else about PD.

On Wed, Feb 17, 2016 at 5:34 AM Lindy Ashford <
[log in to unmask]> wrote:

> I wish they didn't publish speculative research like this, it is quite
> clear that the effect in the study lasted less than a dsy and only in a few
> patients. I believe the placebo effect in PD patients has been overstated,
> and the statement regarding reducing the need for medication is both
> misleading and harms the cause of patients, by the I mean diminishes the
> credibilty of the patient as well as not presenting an accurate picture of
> the real complexity of the condition. This is especiallt pertinent for
> working age PWP who may still have to navigate the issues of employment
> etc, i.e. young onset and stage 1, but still are subject to progression and
> maybe changes that affect their capacity. If there was something more than
> this something substantial I would think differently, but it goes on to
> discuss people who had both received brain surgery AND treatment with
> apomorphine, something we know is rare and in fact fairly unusual except in
> later stage PD. Apologies for this long response, I wished to raise the
> questions in a reasoned way.
>
> On Tuesday, 16 February 2016, Nic Marais <[log in to unmask]> wrote:
>
> > This really fascinates me...;-)
> >
> >
> >
> https://nwpf.org/stay-informed/news/2016/02/parkinson%E2%80%99s-patients-trained-to-respond-to-placebos/
> >
> >
> > Nic 63/21
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to: mailto:
> > [log in to unmask] <javascript:;>
> > In the body of the message put: signoff parkinsn
> >
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:
> [log in to unmask]
> In the body of the message put: signoff parkinsn
>

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn