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John, So sorry about your wife Sue's death. Thank you for posting. It is comforting to feel the presence of fellow travelers. With heartfelt condolences, Kathleen On 26 May 2016 at 02:35, Rayilyn Brown <[log in to unmask]> wrote: > John > > I'm so very sorry to hear of your wife's death. It’s a loss to all > of us. > > For the past year I've been taking an afternoon nap and I would like to > not wake up. I'm glad she was able to die this way. I've had PD 20 > years, was diagnosed at age 60 and the last 5 years have been really bad. > > I don't think I will live to see a cure, but hold onto the slim hope of a > decent treatment. I feel I must report on "promising" research just in > case. > > I'm glad you found comfort in this PIEN List and want you to know I share > your grief and pain. > > sincerely, Ray > > -----Original Message----- From: John > Sent: Wednesday, May 25, 2016 12:51 PM > To: [log in to unmask] > Subject: Re: Xadago/new drug for PD > > > Wow, that sounds interesting. > > Unfortunately, my wife, Sue Horger, died on May 13, 2016. She had PD for > 13 or 14 years, with the last 3 and especially the last 6 months > excruciatingly painful and depressing. She had lost movement in both legs > and feet, and had little mobility in hands and arms. > > She died peacefully at nap-time, at home. > > My last contribution to this group is to report that she had some botox > treatments at UCLA, trying to relieve the tightness in her hand and foot. > They worked quite well for the hand, allowing her to unclench her fingers > and actually get back to holding utensils while eating. The feet not so > well, although they used quite a low dose of the treatment to see how she > would tolerate it, and we never got back for more, intensive treatments. > > I have been a follower of this list for some time, though not much of a > contributor. I really appreciate all of your postings, obviously especially > Ray, and you others too numerous to mention. It has been a source of > comfort, as well as information. I will probably continue to follow as this > group seems to be as much on top of what's going on as any other group in > the Parkinson's world. > > Thank you, > > John Horger > Hermosa Beach, CA > > -----Original Message----- > >> From: Rayilyn Brown <[log in to unmask]> >> Sent: May 24, 2016 11:09 PM >> To: [log in to unmask] >> Subject: Xadago/new drug for PD >> >> http://www.pharmabiz.com/NewsDetails.aspx?aid=95369&sid=2 >> Ray >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn