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-----Original Message----- From: Nick Sent: Friday, July 29, 2016 10:00 PM To: Rayilyn Brown Subject: Re: MJFF Subterfuge Ray. Post the following: I posted the below on the MJFF website after I read the bs he posted, curtesy of the web address you posted on PARKINSN: https://www.michaeljfox.org/foundation/news-detail.php?nilotinib-update- where-we-stand-with-cancer-drug-for-parkinson&et_cid=624998 &et_rid=61638552&et_lid=Read+Moreem_cid= MJFF you are a phony, big time, and so is your CEO. Your bs about finding out if nilotinib is harmful to parkies. What, parkies are different humans than the cancer patients who have been taking nilotinib for 9 years now? Plus Drs. Moussa and Pagan already ran a phase 1 trial with outstanding success. Guess what, Michael, some of those cancer patients are parkies, and the nilotinib is helping their Parkinson's disease. DO YOUR HOMEWORK, AND STOP FEEDING US BS!! Why are you, VARI, and CPT planning for a phase 2 next year, when Georgetown Medical, Drs. Moussa and Pagan, already have FDA approval for a phase 2 study. Why are you duplicating their effort, and delaying phase 2 by at least 6 months? I smell $money$, Michael. You are continuing parkies pain just so you can line your pocket! Shame on you, Michael. SHAME ON YOU! Nick Rayilyn Brown wrote: > Nick > > As a retired teacher I get my pension and medical benefits courtesy > of Los Angeles City Schools. Last Jan 2016 they changed my drugs > from Medicare/CVS to Medicare/SilverScript I think because I earned > Medicare myself. I went through a big ordeal to find out how much > Tasigna would cost me, forgot what it was because it was under $60 > for a 3 month supply of 150 mg. I still get Rx mailed to me from > CVS but SilverScript is my insurance carrier through Medicare. I > don't understand all this but it has something to do with LA City > Schools and the fact that unlike most other retirees I earned my > Medicare before and after teaching. While teaching I paid into LAUSD > pension plan, no SS. > > 1-844-819-3075, available 24-7 is number for SilverScript. It has a > Medicare contract, enrollment depends on contract renewal. > > I don't think my neuro will write prescription for Tasigna, but I can > ask. > > do u want me to post what I've put quotations around around > below? Let me know what u want posted > > -----Original Message----- From: Nick > Sent: Friday, July 29, 2016 6:17 PM > To: Rayilyn Brown > Subject: Re: MJFF Subterfuge > > Hi Ray, > > I can't post on PIEN, as they refuse my post, saying that I'm using the > wrong text format. Liars. > > Please post for me. > > "Fox doing it because of $$$ they will lose when Tasigna proves out in > phase 2. They are delaying their phase 2 for this reason. Dr. Pagan's > phase 2 is FDA approved and ready to go. But he needs more funds. Fox > won't join with him because of donation $$$ they will lose when Tasigna > proves out. > > Ray, get a prescription and start taking Tasigna. My wife has been > taking 100mg/day for 3+ months now, and it has reduced her gait problems > by at least 50%. And she falls much, much less. I started her off at > 50mg/day to see if she could even tolerate Tasigna. Then upped it to > 75mg/day for 10 days. No problems at all. Then upped it to 100mg/day. I > plan to up it to 125mg/day next week. I'm going slow so that she will > easily be acclimated to the increases. Her primarycare doc is monitoring > this process, and she is consulting with an oncologist friend. The > oncologist said her leukemia patients have had no problems with Tasigna, > at the 600mg/day dosage level. > > Viartis only makes 150 and 200mg sizes, so I split the capsules up, > powder inside, using an electronic scale I bought at Amazon. It's a bit > of a pain, but easily done now that I have several months doing it. If > my wife transitions to 150mg, I won't have to split capsules anymore. > The people in Dr. Pagan's phase 1 study must have started with 150mg > capsules. Again, Viartis only makes 150 and 200mg caps." > > Can you tell me more about your insurance SilverScript? I'm having to > go to Tijuana to buy Tasigna, $23/capsule. > > Nick > > Rayilyn Brown wrote: >> Hi Nick are u going to post this on PIEN? >> >> How discouraging!! I even found out that my insurance >> SilverScript would pay for Tasigna with out costing me and arm >> and a leg. >> after 20+ years I am getting so bad I need something soon. >> >> why would Fox do this to us? >> >> I survived ovarian cancer and the CA drugs have bad side effects, but >> so do approved PD drugs. all drugs have side effects 4 some people >> >> -----Original Message----- From: Nick >> Sent: Wednesday, July 27, 2016 10:39 PM >> To: [log in to unmask] >> Subject: MJFF Subterfuge >> >> Hi Ray, >> >> ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn