 |
 |
BRAVO Tony > On Jul 30, 2016, at 2:16 AM, Rayilyn Brown <[log in to unmask]> wrote: > > -----Original Message----- From: Nick Sent: Friday, July 29, 2016 10:00 PM To: Rayilyn Brown Subject: Re: MJFF Subterfuge > Ray. > > Post the following: > > I posted the below on the MJFF website after I read the bs he posted, > curtesy of the web address you posted on PARKINSN: > https://www.michaeljfox.org/foundation/news-detail.php?nilotinib-update- > where-we-stand-with-cancer-drug-for-parkinson&et_cid=624998 > &et_rid=61638552&et_lid=Read+Moreem_cid= > > MJFF you are a phony, big time, and so is your CEO. Your bs about > finding out if nilotinib is harmful to parkies. What, parkies are different > humans than the cancer patients who have been taking nilotinib for > 9 years now? Plus Drs. Moussa and Pagan already ran a phase 1 trial > with outstanding success. > > Guess what, Michael, some of those cancer patients are parkies, and > the nilotinib is helping their Parkinson's disease. > > DO YOUR HOMEWORK, AND STOP FEEDING US BS!! > > Why are you, VARI, and CPT planning for a phase 2 next year, when > Georgetown Medical, Drs. Moussa and Pagan, already have FDA > approval for a phase 2 study. Why are you duplicating their effort, > and delaying phase 2 by at least 6 months? > > I smell $money$, Michael. You are continuing parkies pain just so > you can line your pocket! > > Shame on you, Michael. SHAME ON YOU! > > Nick > > > > > Rayilyn Brown wrote: >> Nick >> >> As a retired teacher I get my pension and medical benefits courtesy of Los Angeles City Schools. Last Jan 2016 they changed my drugs from Medicare/CVS to Medicare/SilverScript I think because I earned Medicare myself. I went through a big ordeal to find out how much Tasigna would cost me, forgot what it was because it was under $60 for a 3 month supply of 150 mg. I still get Rx mailed to me from CVS but SilverScript is my insurance carrier through Medicare. I don't understand all this but it has something to do with LA City Schools and the fact that unlike most other retirees I earned my Medicare before and after teaching. While teaching I paid into LAUSD pension plan, no SS. >> >> 1-844-819-3075, available 24-7 is number for SilverScript. It has a Medicare contract, enrollment depends on contract renewal. >> >> I don't think my neuro will write prescription for Tasigna, but I can ask. >> >> do u want me to post what I've put quotations around around below? Let me know what u want posted >> >> -----Original Message----- From: Nick >> Sent: Friday, July 29, 2016 6:17 PM >> To: Rayilyn Brown >> Subject: Re: MJFF Subterfuge >> >> Hi Ray, >> >> I can't post on PIEN, as they refuse my post, saying that I'm using the >> wrong text format. Liars. >> >> Please post for me. >> >> "Fox doing it because of $$$ they will lose when Tasigna proves out in >> phase 2. They are delaying their phase 2 for this reason. Dr. Pagan's >> phase 2 is FDA approved and ready to go. But he needs more funds. Fox >> won't join with him because of donation $$$ they will lose when Tasigna >> proves out. >> >> Ray, get a prescription and start taking Tasigna. My wife has been >> taking 100mg/day for 3+ months now, and it has reduced her gait problems >> by at least 50%. And she falls much, much less. I started her off at >> 50mg/day to see if she could even tolerate Tasigna. Then upped it to >> 75mg/day for 10 days. No problems at all. Then upped it to 100mg/day. I >> plan to up it to 125mg/day next week. I'm going slow so that she will >> easily be acclimated to the increases. Her primarycare doc is monitoring >> this process, and she is consulting with an oncologist friend. The >> oncologist said her leukemia patients have had no problems with Tasigna, >> at the 600mg/day dosage level. >> >> Viartis only makes 150 and 200mg sizes, so I split the capsules up, >> powder inside, using an electronic scale I bought at Amazon. It's a bit >> of a pain, but easily done now that I have several months doing it. If >> my wife transitions to 150mg, I won't have to split capsules anymore. >> The people in Dr. Pagan's phase 1 study must have started with 150mg >> capsules. Again, Viartis only makes 150 and 200mg caps." >> >> Can you tell me more about your insurance SilverScript? I'm having to >> go to Tijuana to buy Tasigna, $23/capsule. >> >> Nick >> >> Rayilyn Brown wrote: >>> Hi Nick are u going to post this on PIEN? >>> >>> How discouraging!! I even found out that my insurance SilverScript would pay for Tasigna with out costing me and arm and a leg. >>> after 20+ years I am getting so bad I need something soon. >>> >>> why would Fox do this to us? >>> >>> I survived ovarian cancer and the CA drugs have bad side effects, but so do approved PD drugs. all drugs have side effects 4 some people >>> >>> -----Original Message----- From: Nick >>> Sent: Wednesday, July 27, 2016 10:39 PM >>> To: [log in to unmask] >>> Subject: MJFF Subterfuge >>> >>> Hi Ray, > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn