 |
 |
hi, ray! apparently, his luck ran out last summer ;) he had plenty of falls in prior years but never did the damage he seems to be doing now. a bone density test has been declared a priority on our to-do list! on a different topic - has anybody here on the list acquired a theracycle (forced exercise) and if yes, how satisfied were you? trauti ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, June 07, 2017 2:29 AM Subject: Re: Amanda Phillips, etc. > Hi Trauti and Angelica > > so sorry to hear about your spouses falls, so far I've been lucky I > haven't broken anything as Maryse suggested I have a crash helmet I don't > wear > > angelica, my DBS helped me for about 5 years, yes, it is frustrating > > -----Original Message----- > From: angelica horaitis > Sent: Tuesday, June 06, 2017 5:43 AM > To: [log in to unmask] > Subject: Re: Amanda Phillips, etc. > > Hello all. My husband mike is doing okay. It is 30 years he has been > diagnosed. He was 35 years old. His speech and balance are deteriorating. > Falling more and more. Thursday he broke a rib in a fall so cannot > exercise. > > He is also quite frustrated the the DBS can't help him to improve any of > these functions anymore. > > I will say he is a trooper and hangs in there > > My up date from CT. > > > > Sent from my iPhone > >> On Jun 6, 2017, at 5:39 AM, Maryse Schild <[log in to unmask]> wrote: >> >> Hi Ray, sorry to hear about your troubles. Wear a crash helmet ;-) >> I remember trying to look for Amanda Phillips but didn't find anything at >> all. A pity. >> >> Take care >> >> maryse >> >> >>> On Tue, Jun 6, 2017 at 6:58 AM, Rayilyn Brown <[log in to unmask]> >>> wrote: >>> >>> Does anyone know what has happened to Amanda? Its been over a year and >>> a >>> half, I think, since we’ve heard from her. >>> >>> also, how is everybody? I wish everyone would post an update on their >>> condition if they can >>> >>> after 21 years I’m much worse. Have had several falls with head >>> injuries, >>> but have a thick skull (u knew that)but my worse problem besides poor >>> balance is difficulty speaking. >>> >>> Lets reconnect, I miss you all. >>> Ray >>> Rayilyn Brown >>> Past Director AZNPF >>> Arizona Chapter National Parkinson Foundation >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >>> utoronto.ca >>> In the body of the message put: signoff parkinsn >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn