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Hi Trauti, I guess I have a negative feeling re all these PD meds. I've taken Rytary and Rimantadine for over a year now without trouble but no real help either. Wonder how the Tasigna trials are going. The powers that be have a big nerve preventing its approval for PD when so many approved PD meds have such dreadful side effects. Amantadine helped for about a month before all hell broke lose. I'm betting on the Rytary rather than PD progression because these are such powerful drugs. I not only hate getting worse but I can't fight so much anymore. -----Original Message----- From: Trauti Boyd Sent: Wednesday, April 18, 2018 4:12 AM To: [log in to unmask] Subject: Re: Nuplazid hi, ray! i'm not sure if amantedine is responsible for nic's hallucinations or a progression of pd. my husband is getting them more and more these days and the only pd medicine he takes are 2 rytary 61/245 per day. naturally, i have no way of knowing if the levodopa/carbidopa might be the cause of this. and yes - it's a hateful disease with no improvements in sight! :( On 4/18/2018 12:26 AM, Rayilyn Brown wrote: > how I hate this disease! do you get ANY good from these meds? > > -----Original Message----- From: Nic Marais > Sent: Monday, April 16, 2018 4:21 PM > To: [log in to unmask] > Subject: Re: Nuplazid > > Ray > > Any spot on the wall grows legs and start moving... :-) > > Visual hals are worse when I take my glasses off. > > I think what causes the hals is the brain trying to make sense out of the > noise (Of running bathwater, flushing toilet, unfocused spots, dark room > with lots of shadows). Somehow Amantedine triggers this reaction. > > Something completely different; > > When I sit or stand in one position, I progressesively lean over to the > left. It's very suttle and drives my wife bonckers. Reading a book, I > catch > myself hanging on the table with my left hand, my head at an angle of > about 45 degrees to the book. The other night I actually fell out of the > chair... I suspect it is my lefthand back muscles. My left is more shaky > than my right. > > Regards > > Nic > > On Sat, Apr 14, 2018, 08:00 Rayilyn Brown <[log in to unmask]> wrote: > >> Nic >> >> Now I know what those conversations I hear in living room are. And I'm >> getting hard of hearing. >> >> After a month Amantadine really did I number on me, not so nice. Besides >> animals, monsters and dead people a thin saran-like substance was all >> over >> everything! my neuro said this substance was the most common Amantadine >> hallucination. and it helped me but I had to quit it, couldn't stand the >> hals. Have taken Rimantadine for over a year and except for one day when >> I >> thought I was seeing s mall black insects ive ben OK except it doesn't >> help >> much. nothing does >> >> -----Original Message----- >> From: Nic Marais >> Sent: Tuesday, April 10, 2018 5:20 PM >> To: [log in to unmask] >> Subject: Re: Nuplazid >> >> I guess I have to get used to all the animals and people in the house. >> They >> hide behind the bedroom curtains occasionally slipping a hand out and >> wave at me. >> >> They also sit on my bed and turn into big rats running on my bed cover. >> This is only the visual hals. The sound ones are the most difficult to >> judge if it's reality or a hal... I don't mind the music when I flush the >> toilet or run the bathWater. It's rather pleasant ;-) It's the whispers >> and >> conversations and loud bangs that is very disturbing at times' >> >> Anybody like to share their hals on the list? Should be interesting ;-) >> >> Nic 66/24 >> >> >> On Apr 10, 2018 8:08 AM, "Rayilyn Brown" <[log in to unmask]> wrote: >> >> yes, I saw this too >> >> >> -----Original Message----- >> From: Maryse Schild >> Sent: Monday, April 09, 2018 10:35 AM >> To: [log in to unmask] >> Subject: Nuplazid >> >> beware: >> >> >> https://edition.cnn.com/2018/04/09/health/parkinsons-drug-nuplazid-invs/index.html >> >> maryse >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn