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Hi ray and all, I have the same hallucinations others talk about, plus one nobody's mentioned (I think): tactile delusions, in which, say, tile grouting morphs into wavy strings I “feel” when I reach out to "touch" them. That lasts a nanosecond and then the illusion's gone. It’s only happened a few Times. I did a little reading up on Tasigna. They appear to be going ahead at Georgetown. The study is fully Enrolled. I Imaginethere are lots of Issues to be worked out. First things first. Kathleen On 19 April 2018 at 23:02, Rayilyn Brown <[log in to unmask]> wrote: > Hi Trauti, > > I guess I have a negative feeling re all these PD meds. I've taken Rytary > and Rimantadine for over a year now without trouble but no real help > either. Wonder how the Tasigna trials are going. The powers that be > have a big nerve preventing its approval for PD when so many approved PD > meds have such dreadful side effects. Amantadine helped for about a > month before all hell broke lose. I'm betting on the Rytary rather than PD > progression because these are such powerful drugs. > > I not only hate getting worse but I can't fight so much anymore. > > -----Original Message----- From: Trauti Boyd > Sent: Wednesday, April 18, 2018 4:12 AM > To: [log in to unmask] > Subject: Re: Nuplazid > > hi, ray! i'm not sure if amantedine is responsible for nic's > hallucinations or a progression of pd. my husband is getting them more > and more these days and the only pd medicine he takes are 2 rytary > 61/245 per day. naturally, i have no way of knowing if the > levodopa/carbidopa might be the cause of this. > > and yes - it's a hateful disease with no improvements in sight! :( > > > On 4/18/2018 12:26 AM, Rayilyn Brown wrote: > how I hate this disease! do you get ANY good from these meds? >> >> -----Original Message----- From: Nic Marais >> Sent: Monday, April 16, 2018 4:21 PM >> To: [log in to unmask] >> Subject: Re: Nuplazid >> >> Ray >> >> Any spot on the wall grows legs and start moving... :-) >> >> Visual hals are worse when I take my glasses off. >> >> I think what causes the hals is the brain trying to make sense out of the >> noise (Of running bathwater, flushing toilet, unfocused spots, dark room >> with lots of shadows). Somehow Amantedine triggers this reaction. >> >> Something completely different; >> >> When I sit or stand in one position, I progressesively lean over to the >> left. It's very suttle and drives my wife bonckers. Reading a book, I >> catch >> myself hanging on the table with my left hand, my head at an angle of >> about 45 degrees to the book. The other night I actually fell out of the >> chair... I suspect it is my lefthand back muscles. My left is more shaky >> than my right. >> >> Regards >> >> Nic >> >> On Sat, Apr 14, 2018, 08:00 Rayilyn Brown <[log in to unmask]> wrote: >> >> Nic >>> >>> Now I know what those conversations I hear in living room are. And I'm >>> getting hard of hearing. >>> >>> After a month Amantadine really did I number on me, not so nice. Besides >>> animals, monsters and dead people a thin saran-like substance was all >>> over >>> everything! my neuro said this substance was the most common Amantadine >>> hallucination. and it helped me but I had to quit it, couldn't stand the >>> hals. Have taken Rimantadine for over a year and except for one day when >>> I >>> thought I was seeing s mall black insects ive ben OK except it doesn't >>> help >>> much. nothing does >>> >>> -----Original Message----- >>> From: Nic Marais >>> Sent: Tuesday, April 10, 2018 5:20 PM >>> To: [log in to unmask] >>> Subject: Re: Nuplazid >>> >>> I guess I have to get used to all the animals and people in the house. >>> They >>> hide behind the bedroom curtains occasionally slipping a hand out and >>> wave at me. >>> >>> They also sit on my bed and turn into big rats running on my bed cover. >>> This is only the visual hals. The sound ones are the most difficult to >>> judge if it's reality or a hal... I don't mind the music when I flush the >>> toilet or run the bathWater. It's rather pleasant ;-) It's the whispers >>> and >>> conversations and loud bangs that is very disturbing at times' >>> >>> Anybody like to share their hals on the list? Should be interesting ;-) >>> >>> Nic 66/24 >>> >>> >>> On Apr 10, 2018 8:08 AM, "Rayilyn Brown" <[log in to unmask]> wrote: >>> >>> yes, I saw this too >>> >>> >>> -----Original Message---yo li-- >> >> >>> From: Maryse Schild >>> Sent: Monday, April 09, 2018 10:35 AM >>> To: [log in to unmask] >>> Subject: Nuplazid >>> >>> beware: >>> >>> >>> >>> https://edition.cnn.com/2018/04/09/health/parkinsons-drug-nuplazid-invs/index.html >>> >>> maryse >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto: >>> [log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto: >>> [log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto: >>> [log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto: >>> [log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> >> > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn