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I am surprised Rytary works better for it is the same as Sinemet  CR(
carbidopa + ldopa)

John used to take sinemet 25/100 diluted in tonic so he could sip it as
needed. ( liquid sinemet is usually diluted in OJ)

Everyone to their formula

Maryse ex cg John 20+yrs of PD

On 5 May 2018 at 13:49, Trauti Boyd <[log in to unmask]> wrote:

> hi, don! please, take your time deciding on dbs. as we found out, the
> tremor might be the least of your problems and while ray's mind stayed
> sharp after dbs that is not a given. :( a good portion of dbs patients have
> a drastic cognitive decline and, unfortunately, my husband is one of them.
>
> also, check with your doctor about rytary. this has worked much better for
> my husband than sinemet.
>
> good luck!
>
>
>
> On 5/4/2018 11:26 AM, Don Kodner wrote:
>
>> Thanks for your posts, Rayilyn and Angelica.  Rayilyn, I have considered
>> DBS surgery, but I have been doing pretty well with just sinemet pills, on
>> a 3-hour schedule.  Just a couple of weeks before my most recent
>> check-up,the pills started to wear out faster and my off-periods lasted
>> longer.  My nurse practitioner put me on a Neupro patch (rotigotine), and
>> I
>> have noticed some improvement (my wife actually sees it better than I do).
>> I may have this wrong, but I believe that the doctors here recommend
>> waiting 5 years before trying DBS.  I will reach that point this fall.  I
>> will look (with some trepidation) at cost and other patients' experiences.
>> It's encouraging to hear that the surgery worked well for you.
>>
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