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perhaps they changed the colour? ;-) maryse On 6 May 2018 at 15:37, Trauti Boyd <[log in to unmask]> wrote: > hi, maryse! yes, i was surprised too! but there was definitely an > improvement and to such a degree that the much higher cost for rytary was > worth it imo. it is very puzzling indeed since rytary is just a combination > of carbidopa and levidopa and i have no idea how they justified the sky > high price tag for something that has been on the market forever. > > > > On 5/6/2018 3:54 AM, Maryse Schild wrote: > >> I am surprised Rytary works better for it is the same as Sinemet CR( >> carbidopa + ldopa) >> >> John used to take sinemet 25/100 diluted in tonic so he could sip it as >> needed. ( liquid sinemet is usually diluted in OJ) >> >> Everyone to their formula >> >> Maryse ex cg John 20+yrs of PD >> >> On 5 May 2018 at 13:49, Trauti Boyd <[log in to unmask]> wrote: >> >> hi, don! please, take your time deciding on dbs. as we found out, the >>> tremor might be the least of your problems and while ray's mind stayed >>> sharp after dbs that is not a given. :( a good portion of dbs patients >>> have >>> a drastic cognitive decline and, unfortunately, my husband is one of >>> them. >>> >>> also, check with your doctor about rytary. this has worked much better >>> for >>> my husband than sinemet. >>> >>> good luck! >>> >>> >>> >>> On 5/4/2018 11:26 AM, Don Kodner wrote: >>> >>> Thanks for your posts, Rayilyn and Angelica. Rayilyn, I have considered >>>> DBS surgery, but I have been doing pretty well with just sinemet pills, >>>> on >>>> a 3-hour schedule. Just a couple of weeks before my most recent >>>> check-up,the pills started to wear out faster and my off-periods lasted >>>> longer. My nurse practitioner put me on a Neupro patch (rotigotine), >>>> and >>>> I >>>> have noticed some improvement (my wife actually sees it better than I >>>> do). >>>> I may have this wrong, but I believe that the doctors here recommend >>>> waiting 5 years before trying DBS. I will reach that point this fall. >>>> I >>>> will look (with some trepidation) at cost and other patients' >>>> experiences. >>>> It's encouraging to hear that the surgery worked well for you. >>>> >>>> ---------------------------------------------------------------------- >>>> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >>>> nto.ca >>>> In the body of the message put: signoff parkinsn >>>> >>>> >>>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >>> nto.ca >>> In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> nto.ca >> In the body of the message put: signoff parkinsn >> >> > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > nto.ca > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn