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hi, maryse! yes, i was surprised too! but there was definitely an improvement and to such a degree that the much higher cost for rytary was worth it imo. it is very puzzling indeed since rytary is just a combination of carbidopa and levidopa and i have no idea how they justified the sky high price tag for something that has been on the market forever. On 5/6/2018 3:54 AM, Maryse Schild wrote: > I am surprised Rytary works better for it is the same as Sinemet CR( > carbidopa + ldopa) > > John used to take sinemet 25/100 diluted in tonic so he could sip it as > needed. ( liquid sinemet is usually diluted in OJ) > > Everyone to their formula > > Maryse ex cg John 20+yrs of PD > > On 5 May 2018 at 13:49, Trauti Boyd <[log in to unmask]> wrote: > >> hi, don! please, take your time deciding on dbs. as we found out, the >> tremor might be the least of your problems and while ray's mind stayed >> sharp after dbs that is not a given. :( a good portion of dbs patients have >> a drastic cognitive decline and, unfortunately, my husband is one of them. >> >> also, check with your doctor about rytary. this has worked much better for >> my husband than sinemet. >> >> good luck! >> >> >> >> On 5/4/2018 11:26 AM, Don Kodner wrote: >> >>> Thanks for your posts, Rayilyn and Angelica. Rayilyn, I have considered >>> DBS surgery, but I have been doing pretty well with just sinemet pills, on >>> a 3-hour schedule. Just a couple of weeks before my most recent >>> check-up,the pills started to wear out faster and my off-periods lasted >>> longer. My nurse practitioner put me on a Neupro patch (rotigotine), and >>> I >>> have noticed some improvement (my wife actually sees it better than I do). >>> I may have this wrong, but I believe that the doctors here recommend >>> waiting 5 years before trying DBS. I will reach that point this fall. I >>> will look (with some trepidation) at cost and other patients' experiences. >>> It's encouraging to hear that the surgery worked well for you. >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >>> nto.ca >>> In the body of the message put: signoff parkinsn >>> >>> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> nto.ca >> In the body of the message put: signoff parkinsn >> > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn