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it's puzzling though - the original georgetown trial did include somebody with dbs and he showed impressive improvement. off-label prescriptions are still pretty much impossible to get. my husband's neurologist again refused On 9/19/2018 10:23 PM, Rayilyn Brown wrote: > I think DBS excludes people because they don’t know if improvements > are due to med or DBS. However, in my experience (22 years) with PD > you get worse no matter what you do. Since Tasigna is already > approved for cancer, I don’t see why you cant take it, just not be in > a trial. I would know if something helped. > > > -----Original Message----- From: Trauti Boyd > Sent: Tuesday, September 18, 2018 3:46 PM > To: [log in to unmask] > Subject: Re: Nilotinib trial goes on > > same for my husband :( > > > On 9/17/2018 11:31 PM, Rayilyn Brown wrote: >> leaves me out >> >> -----Original Message----- From: Trauti Boyd >> Sent: Sunday, September 16, 2018 3:16 AM >> To: [log in to unmask] >> Subject: Re: Nilotinib trial goes on >> >> unfortunately, people with dbs are excluded >> >> >> On 9/15/2018 11:31 PM, Rayilyn Brown wrote: >>> https://www.michaeljfox.org/foundation/news-detail.php?parkinson-nilotinib-trial-enrolling-participants-a >>> >>> >>> >>> Ray >>> Rayilyn Brown >>> Past Director AZNPF >>> Arizona Chapter National Parkinson Foundation >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn