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I think DBS excludes people because they don’t know if improvements are due 
to med or DBS.  However, in my experience (22 years) with PD you get worse 
no matter what you do.  Since Tasigna is already approved for cancer, I don’t 
see why you cant take it, just not be in a trial. I would know if something 
helped.


-----Original Message----- 
From: Trauti Boyd
Sent: Tuesday, September 18, 2018 3:46 PM
To: [log in to unmask]
Subject: Re: Nilotinib trial goes on

same for my husband :(


On 9/17/2018 11:31 PM, Rayilyn Brown wrote:
> leaves me out
>
> -----Original Message----- From: Trauti Boyd
> Sent: Sunday, September 16, 2018 3:16 AM
> To: [log in to unmask]
> Subject: Re: Nilotinib trial goes on
>
> unfortunately, people with dbs are excluded
>
>
> On 9/15/2018 11:31 PM, Rayilyn Brown wrote:
>> https://www.michaeljfox.org/foundation/news-detail.php?parkinson-nilotinib-trial-enrolling-participants-a
>>
>>
>> Ray
>> Rayilyn Brown
>> Past Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>>
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