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Hello, I just began subscribing to this account
last week after stumbling upon it quite accidentally!
 
I am an Undergraduate student in my final year
of studies here in San Diego, CA.  My interest has
always been on the internet, but my interest in
this group is more personal.
 
My father was diagnosed with Parkinson's disease
two years ago at the young age of 46 years.
Needless to say I was a bit disheartened as I started
doing research about the disease to learn that
people usually don't get diagnosed so young, though
they may have the disease for over 20 years before
being diagnosed.  What bothers me the most about
him and this disease is that the disease seemed to
progress very suddenly and quickly upon him.
 
The first symptoms were simply that he would "drag"
his feet when he walked, but we simply teased him
as being lazy.  My first concern actually came 7 years
ago when I went jogging with him.  He seemed to come
down hard on his left foot when we ran, and I thought
this to be a little abnormal.
 
Of course, the shaking didn't show up until 4 years
later, and it was usually only when he would be upset,
or extremely cold.  When other symptoms began to bother
him he finally went to a specialist and was diagnosed
with the disease.  The most strange thing, however,
is that he went though a very stressful year after his
diagnosis, and now it seems, even with medication, he
"shakes" more than ever, and his flexibility became
quite rigid.
 
Although, I must retract that statement a little to say
that he has been doing quite well these past 4 months.
 
I am subscribing to this group to keep up on the latest
information, yes, but also for moral support.  You see,
both my mother and myself are trying to stay up with
the information about the disease and coming to grips
to what it means for the future....but my father refuses
to talk about it, or read any literature about it.
I think he is afraid...that he is deeply saddened at
what his future might hold, and so he refuses to come
to grips to what he has.
 
This is indeed the WRONG way to deal with a non-death
causing disease, for, from what I understand, but doing
the write activities, you can control your body easier.
 
I shall share all my readings with my mother, and of
course, make them available to my father (though he won't
read them).  This group means a lot to me, and I am
glad Barbara has set it up.
 
Thank you for reading such a long message!
 
Heidi Hasemann    [log in to unmask]