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My brother, Bill Updegraff, initially joined this network in my behalf.  My
husband is Ralph Wright, and  my guide in computer functions.   I am Lucile
(65) and I am the Parkinson patient.
 
In August, 1989, I was diagnosed with pd.  My work was as a reading
specialist, and I actually was relieved to have a name for what I had
experienced.  The neurologist said on that initial visit that I should resign
immediately.  My compromise was to work six weeks until a schedule was
prepared for the year.
 
Our family doctor and friend had introduced me to the idea of possible
Parkinson's the previous February when I told him about a strange tremor in
the middle finger of the left hand.   By April  I was a zombie--little sleep
at night and so tired I was not capable of feeling emotion even.  I was
referred to a good internist, rheumatologist because of back pain and
weakness which persisted  in spite of surgery a few years before.  He kept a
close watch on me that summer until I developed telltale cogwheeling.
 
At the initial neurologist's visit I asked how much time I had before being
disabled, unable to do watercoloring, or pursue reasonable goals and
activities.  He looked at me and said, "Whatever you want to do with your
life, do it in the next three years."
 
I stopped teaching October 1989 and started getting my life in order.  Ralph
decided to take early retirement, too, from an administrative position at a
state university.  We also rather promptly contacted a mission and offered
to serve Christ with them for 15 months starting May ,1990.  Our field choice
was Alaska.
 
What a wonderful experience that was!  We worked with Alaska Bible College in
Glennallen, extending our time to total  two and a half years.  I taught one
remedial course the first semester and tutored a bit after that.  Any kind of
public activity became increasingly difficult.  However, I was able to help
Ralph in office work and in setting up a library after he was assigned to
Anchorage as Extension Coordinator.  We were surprised to facilitate the
purchase of a nice unit in a strip mall for an easily accessible site for the
Extension.
 
I found a remarkable neurologist and had excellent medical care in Alaska.
From the start, medication was a major problem.  On one half of a Sinemet, I
spent a sleepless night, feeling as though my throat would close, having
bowel and leg cramps.  So everyone backed off that.   I started on Artane
which controlled the tremor, but made me pretty weird with impaired short
term memory, etc.  I also started Eldepryl in December 1989 and have
continued on that ever since.  In Alaska my doctor replaced Artane with
Klonopin.  It helped a little;  she also started  me on Bromocriptine.  That
kept me moving, but the tremors have steadily progressed.  She tried a number
of drugs, but  all were withdrawn except the Klonopin , Eldepryl, and
Bromocriptine.  I also take a half a Desyrel at bedtime.
 
Back in PA since November 1992, I  was advised by the specialist at Hershey
Medical Center to substitute Parsidol for the Klonopin.  Parsidol is
available in Canada as Parsitan, no longer manufactured in USA.  It is a much
better medication for me, although I cannot seem to take doses large enough
to get the effect desired.   In the face of decidedly increasing tremor, I
was referred to University of Pa. Movement Disorder Clinic.   Following the
directions for miniscule doses of Sinemet, I have succeeded in taking a half
a tablet three times a day (25/100).  Currently, I am in the process of
withdrawing from the Bromocriptine,  very slowly.
 
So I am plagued by tremor, but am quite mobile, a major blessing.  I do two
miles a day on a bicycle, continue back exercises, and neck and shoulder also
(bursitis).  I do my own housework and cooking except for heavy vacuuming.
We entertain quite a bit and also do college fairs, etc. recruiting for the
mission and college.  When I become too uncomfortable, I try to collect
myself by withdrawing a bit.  I drive and even paint some and play the piano.
(The most marvelous thing happened in Alaska.  A faculty wife taught me
watercolor and I was able to paint a few pictures which were printed and some
of which I even sold at malls in Alaska!)
 
How do you Parkies out there control tremor?  Big question!!!  It really
bothers me especially in public.   This is my long story.