This is a correction to my previous message. The errors were in the address
and fax phone numbers. Also, some areas of the midwest did not see I to I
because of a preempting by President Clinton.
Eye to Eye with Connie Chung was a great success last night. She did express
many of the concerns faced by Young-Onset Parkinson s disease sufferers. I
first met Emily Hamilton in 1989. She was 11 years old and in the first year
of taking Sinemet. At that time she was taking half of a Sinemet 10/100
twice daily. According to the program she is now on three pills a day. The
group pictures were from a YPSN State-wide meeting held in San Luis Obispo,
CA in Oct. of last year. Our guest speaker was Dr. Caroline Tanner of the
Parkinson's Institute. She also was taking blood samples of Young-Onset
people for an early marker in PD onset research study. Credit was not given
to the people in those scenes. Following identifies them.
SCENES AT SUPPORT GROUP MEETING
First meeting scene:
Three ladies sitting: Mary Yost, Joanne Nelson
and Tamar Wise (back of head)
Close-up of lady with glasses: Arlette Johnson
Close-up of second lady with glasses: Mary Yost
Five men: Tony Schoonenberg, Millard Tipp, Rod Preston, Monico Garcia,
Richard Hazzard
( On the far left of the picture, is a left shoe and left pant leg of
maybe me.)
Three women: Mary Yost, Joanne Nelson,
Nancy Miller
Women talking: Tamar Wise (back of head), Lenore
Rabjohns, (always talking), Leah Schorr
Second meeting scene:
Rod Preston and Dr. Caroline Tanner
Tom Brown (arms out stretched) and Dr. Caroline Tanner
Teacher being evaluated by doctor:
Abraham Leiberman, MD,
Barrow Neurological Institute
Phoenix, AZ.
Lady on doctors bench: unknown
A little something about the people on TV. All the people you saw had PD for
over 10 years with the exception of Nancy Miller and Mary Yost.
Rod Preston Fetal Tissue Recipient at Good Samaritan
Monico Garcia Fetal Tissue Recipient at Good Samaritan
Richard Hazard Adrenal Tissue Recipient at Vanderbelt U.
Lenore Rabjohns Pallidotomy in Sweden on one side, second side just last
month and doing well
Leah Schorr Assistant Editor of our newsletter
Arlette Johnson APDA Information and Referral Center coordinator for
national young onset
Parkinson's
Joanne Nelson Founder of Wellness Interaction Network (WIN)
Nancy Miller The first time she had been to a YPSN meeting
Millard Tipp Has tried every experimental drug program looking for a
solution
Tony Schoonenberg Believes in not taking Sinemet, he is on Permax and all the
vitamins one could guess
Mary Yost Executive secretary at UCLA who just came out of the closet a few
months ago.
Tamar Wise Single parent with a teenager
Dr. Caroline Tanner The Parkinson s Institue, Sunnyvale, CA
Dr. William Langston The Parkinson s Institue, Sunnyvale, CA
Currently on the computer networks:
Mary Yost [log in to unmask],edu
Arlette Johnson [log in to unmask]
Tony Schoonenberg YPSN BBS (no access to networks)
It would help the cause if everyone would write a letter or send a fax to CBS
expressing theirs thoughts on the broadcast last night. The address and fax
number are the following:
CBS News
Eye to Eye With Connie Chung
555 West 57th Street
New York, NY 10019
FAX 212-975-9197
One final comment. The Eye to Eye show was preempted by some stations in the
midwest by President Clinton's town meeting. Please let CBS know you want it
rebroadcast.
Thanks,
Alan
