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Thanks for the information on the CBS special .  Thanks!
 
On Sun, 10 Apr 1994, Alan Bonander wrote:
 
> This is a correction to my previous message.  The errors were in the address
> and fax phone numbers.  Also, some areas of the midwest did not see I to I
> because of a preempting by President Clinton.
>
> Eye to Eye with Connie Chung was a great success last night.  She did express
> many of the concerns faced by Young-Onset Parkinson s disease sufferers.  I
> first met Emily Hamilton in 1989.  She was 11 years old and in the first year
> of taking Sinemet.  At that time she was taking half of a Sinemet 10/100
> twice daily.  According to the program she is now on three pills a day. The
> group pictures were from a YPSN State-wide meeting held in San Luis Obispo,
> CA in Oct. of last year.  Our guest speaker was Dr. Caroline Tanner of the
> Parkinson's Institute.  She also was taking blood samples of Young-Onset
> people for an early marker in PD onset research study. Credit was not given
> to the people in those scenes.  Following identifies them.
>
> SCENES AT SUPPORT GROUP MEETING
>
> First meeting scene:
>
> Three ladies sitting:  Mary Yost, Joanne Nelson
>      and Tamar Wise (back of head)
> Close-up of lady with glasses: Arlette Johnson
> Close-up of second lady with glasses: Mary Yost
> Five men: Tony Schoonenberg, Millard Tipp, Rod  Preston, Monico Garcia,
> Richard Hazzard
>      ( On the far left of the picture, is a left                        shoe
 and
>   left pant leg of
> maybe me.)
> Three women: Mary Yost, Joanne Nelson,
>         Nancy Miller
> Women talking: Tamar Wise (back of head), Lenore
>         Rabjohns, (always talking), Leah Schorr
>
> Second meeting scene:
>
> Rod Preston and Dr. Caroline Tanner
> Tom Brown (arms out stretched) and Dr. Caroline         Tanner
>
> Teacher being evaluated by doctor:
>       Abraham Leiberman, MD,
>       Barrow Neurological Institute
>       Phoenix, AZ.
>
> Lady on doctors bench:  unknown
>
> A little something about the people on TV. All the people you saw had PD for
> over 10 years with the exception of Nancy Miller and Mary Yost.
>
> Rod Preston     Fetal Tissue Recipient at Good Samaritan
> Monico Garcia   Fetal Tissue Recipient at Good Samaritan
> Richard Hazard  Adrenal Tissue Recipient at Vanderbelt U.
> Lenore Rabjohns Pallidotomy in Sweden on one side, second side just last
> month and doing well
> Leah Schorr     Assistant Editor of our newsletter
> Arlette Johnson         APDA Information and Referral Center coordinator for
> national young onset
>         Parkinson's
> Joanne Nelson           Founder of Wellness Interaction Network (WIN)
> Nancy Miller            The first time she had been to a YPSN meeting
> Millard Tipp            Has tried every experimental drug program looking for
 a
> solution
> Tony Schoonenberg       Believes in not taking Sinemet, he is on Permax and
 all
>  the
> vitamins one could guess
> Mary Yost       Executive secretary at UCLA who just came out of the closet a
 fe
>  w
> months ago.
> Tamar Wise      Single parent with a teenager
>
>
> Dr. Caroline Tanner     The Parkinson s Institue, Sunnyvale, CA
> Dr. William Langston    The Parkinson s Institue, Sunnyvale, CA
>
> Currently on the computer networks:
>         Mary Yost                       [log in to unmask],edu
>         Arlette Johnson [log in to unmask]
>         Tony Schoonenberg       YPSN BBS (no access to networks)
>
> It would help the cause if everyone would write a letter or send a fax to CBS
> expressing theirs thoughts on the broadcast last night.  The address and fax
> number are the following:
>
> CBS News
> Eye to Eye With Connie Chung
> 555 West 57th Street
> New York, NY 10019
> FAX 212-975-9197
>
> One final comment.  The Eye to Eye show was preempted by some stations in the
> midwest by President Clinton's town meeting.  Please let CBS know you want it
> rebroadcast.
>
> Thanks,
> Alan
>