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I picked this up on the YPSN BB in CA and pass it along to anyone interested. ================== > From: Neal Slatkin, MD > To: All > Subject: PD symptoms and menstruation/menopause Other than for two brief reports by Marsden and Golbe, there is scant medical literature on the effects of menstruation and menopause on Parkinsonian symptoms. Recently I have seen two patients whose symptoms were dramatically worsened just prior to menstruation. One of these patients is immediately premenopausal. I'm wondering how many young woman with Parkinsons experience a worsening of symptoms in association with menstruation, and what if any treatments you have found successful in treating these exacerbations. Have, for example, any of you woman noted any change in symptoms when you went on estrogen replacement therapy ( Premarin for most ), or when you went on or off birth control pills? As most of us frustrated by the treatment of Parkinsons soon come to recognize, the neuro-endocrine system is staggering in its complexity. Unfortunately, too few studies seem to have looked at hormonal effects. Perhaps this would be a fruitful area for a large patient survey. Please share with me any experiences or thoughts you might have had on this subject. Thanks. > From: Arlette Johnson > To: Neal Slatkin > Subject: PD symptoms and menstruation/menopause Dr. Slatkin, Having heard similar stories from women across the nation, as they contact me, and having similar problems myself, I along with Dr. Nutt, Dr. Perla Thulin, at Oregon State Health University, and Dr. Matt Kurth & Susan Imke, have just completed a survey on hormonal response in women w/PD. I have close to 800 women in my database that we will be sending this survey to. It will go out soon. If you have women who would like to receive this survey, please have them contact me immediately, as we are making our list up now. I can be reached at: 800 223-9776 or Young Parkinson Information & Referral Center, 1041 Foxenwood Drive, Santa Maria CA 93455. This is a problem for many women, requiring increasing their meds prior to menses. Premarin can be a problem also. I know this survey will shed some light into this unexplored area--and hopefully result in some answers & help. Arlette Johnson. Note: Arlette Johnson can be reached at 800-223-9776 or about twice weekly her husband, Greg, checks in on [log in to unmask] Regards, Alan Bonander AOL:Bonander Internet:[log in to unmask]