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Hy, everybody! I'm an "old" (about 8 months) hand at
the list, which has been invaluable in the mamanagement of
my PD (diagnosed 15 years ago) I'm 57 years old, male, living in
Mexico and now quite worried because a precipitous
downturn in my symptoms, rigidity, freezing, but above all, very
painful muscle contractions, that nobody knows here
how to fight. They are most prominent in the chest, shoulders,
back and groin, and seem to be more associated with the
OFF periods. I used to have strong dyskinesias, but now they are
less strong and frequent, so I assume that this pain is due to a
lessening the effect of Sinemet that I take in liquid form 8
tablets of 100/25, combined with 4 Permax, of 1mg. plus Vit. C,
in 800 c.c. of distilled water. Then I take 50 cc. each hour
from 8 am to 11 pm.
Has anyone experienced strong pain due to
rigidity, and what did you do? The only relief used to be Xanax
(Alprazolam), but now the relief is shorter and the dose is
larger, and I'm aware of the addictive side effect.
I've decided to have a pallidotomy next month in Denver
with a neurologist that is not only a very capable professional,
but a human been, concerned, involved , quite different from the
wealth of neurologists and neurosurgeons that we consulted in
all this years. And because of that, I'm willing to be his first
case. (Besides the fact that in other places that my Denver
doctor referred me, Emory they not only didn't annswer, but I
know that there is a 1 year of waiting list) .
Many thanks for any comment and suggestion.
Sergio Guzik,
Mexico
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