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While exploring the internet I came accross the following which
may be helpful to some subscribers.
 
Also does the fact that I have not heard from anyone on the list regarding a
Parkinsonian condition by the name of Cortico-Basal ganglionic
Degeneration, mean that it is so rare that folks on this list have
not heard of it, or can not tell me where or how to obtain more
information? My mother was given this diagnosis about two years
ago and she has yet to find someone else with the same diagnosis.
I hope this info from the National Library of Medicine is helpful.
Larry Fiebert
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Forwarded message ---------- Date: Fri, 21 Oct 1994 22:59:31 -0400
From: JOPAC application <[log in to unmask]>
To: [log in to unmask]
Subject: RECORDS SELECTEDs FROM NATIONAL LIBRARY OF MEDICINE
 
 
=============== Download Request # 1 =============
 
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NAME                    National Institute of Neurological Disorders and
                        Stroke (NINDS)
ADDRESS                 9000 Rockville Pike
                        Building #31, Room 8A-06
                        Bethesda, MD 20892
INSTITUTION CONTACTS    Head
TELEPHONE NUMBER(S)     (301) 496-5924 Voice
                        (800) 352-9424 Voice
LAST REVISION DATE      Feb 9, 1993
DESCRIPTION              The NINDS, originally established in 1950 as the
                        National Institute of Neurological Diseases and
                        Blindness and in 1975 as the National Institute of
                        Neurological and Communicative Disorders and Stroke,
                        became the National Institute of Neurological
                        Disorders and Stroke in 1988.  The NINDS conducts and
                        supports research and research training on the
                        causes, prevention, diagnosis, and treatment of
                        neurological disorders and stroke. The Institute
                        awards grants for research projects, program
                        projects, and center grants; provides training
                        support to institutions and fellowships to
                        individuals in the fields of neurological disorders
                        and stroke; conducts intramural and collaborative
                        research; and collects and disseminates research
                        information. Requests for information should be
                        directed to the NINDS Office of Scientific and Health
                        Reports.
MATERIALS AVAILABLE      Consumer publications are available on amyotrophic
                        lateral sclerosis, aphasia, autism, cerebral palsy,
                        dementias, epilepsy, Friedrich's ataxia, Huntington's
                        disease, multiple sclerosis, muscular dystrophy,
                        myasthenia gravis, neurofibromatosis, Parkinson's
                        disease, shingles, spina bifida, spinal cord injury,
                        torsion dystonia, stroke, head injury, Gaucher's
                        disease, Niemann-Pick disease, Fabry's disease,
                        Tay-Sachs disease, Farber's disease, metachromatic
                        leukodystrophy, and lipid storage diseases. Materials
                        for professionals cover neurological disorders,
                        stroke, epilepsy, research and training programs,
                        Alzheimer's disease, and spinal cord injuries.
SUBJECTS                *Cerebrovascular Disorders
                        Clinical Protocols
                        *Communicative Disorders
                        Information Services
                        National Institutes of Health (U.S.)
                        *Nervous System Diseases
                        *Neurologic Manifestations
                        Research Support
OTHER TERMS             ALZHEIMER'S DISEASE
                        CEREBRAL PALSY
                        DEMYELINATING DISEASES
                        EPILEPSY
                        FUNDING SOURCES
                        INJURIES
                        MENTAL HANDICAPS
                        NERVOUS SYSTEM DISEASES
                        NEUROMUSCULAR DISEASES
                        RESEARCH
                        SPINAL CORD INJURIES
                        STROKE
                        TRAINING PROGRAMS
NLM UNIQUE IDENTIFIER   HR/0046