JF thanks for the treatment rundown for RLS. I've tried all the usual
stuff like exercise, massage, pounding the legs with a mallet, freezing them,
frying them, lowering the car seat and hanging my toes on the sun visor -
only momentary relief. I've tried codeine, Klonopin, Baclofen - nothing.
Now even Sinemet is wearing out and 25/100 CR at bedtime only works for 3-4
hours.
I am interested in your suggestion of TENS - transcutaneous nerve
treatment involving electrodes placed on the skin of the affected area and
receiving small electrical charges. I remember a friend who had intractable
back pain and wore an apparatus she could activate to receive small
electrical charges which helped a lot.
Vern I can't take Limbitrol to get some needed sleep. It is a
combination drug of Elavil and Librium. Elavil makes me very jumpy and
nervous and wide awake. Back to the drawing board.
Today I got an information bulletin from RLS Foundation with a list of
member centers and labs accredited by the American Sleep Disorders Assoc. and
I'll be damned we have a specialist here at Dartmouth - Michael Sateia, M.D.
- and my doctors didn't inform me.
I am so busy trying to find an answer to this awful neurological disorder
before it damages my physical, social, and family life, that I've lost track
of my Parkinsons. It is probably a mess, but who has time to check.
I'm still waiting to hear from someone being treated for RLS with
pergolide (Permax) or bromocriptine (Parlodel) - good or bad.
Barbara Yacos
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