---------- Forwarded message ---------- Date: Tue, 6 Dec 1994 10:51:57 -0500 (EST) From: Jayne Butler <[log in to unmask]> To: Barbara Patterson <[log in to unmask]> Cc: Tom Ferguson <[log in to unmask]> Subject: Re: Researchers Barbara, Thanks for the note. The issue raised is one that I am concerned about. My own particular area of interest is as stated below. However, I am also compiling summaries of the 25 best self-help mailing lists for a doctor (Tom Ferguson) who lives in Texas. Tom is writing a book and has asked me to include quotes from the list to give a flavour for typical postings to the group. I will not include a posting from PARKINSN without permission of the person who wrote the note. I do not have to include PARKINSN in the 25 at all if that is the wish of the members of the list. I certainly don't want to upset anyone. Frances raises a very important issue and I hope I have clarified it. The whole area of ethics in research on the Internet is of growing concern. I know of two Canadians researchers who are studying this very area. If anyone would like to e-mail me their concerns rather than clutter up the list with this topic I would be happy to hear about it. Replies will help me understand the perspective of list members in an area that I believe needs a lot of consideration. Replies will also help me plan an ethical review for any future research I do related to my own topic of interest. I will also forward a copy of this note to Tom. Thanks very much Barbara. Jayne On Tue, 6 Dec 1994, Barbara Patterson wrote: > Frances: No one is going to lift intimate stories without asking > individual permission. I have cc'd this message to Jayne so she is aware > of your position. What Jayne wants to know is 'how' a list like this > works and if our type of list would be useful in other cases. Barb > > On Mon, 5 Dec 1994, Frances Taira wrote: > > > 1. Invite researchers to post abstract and goals and invite members > > to respond by e-mail. > > 2. If you allow writers to lurk and lift intimate stories without > > asking individual permission > > ou could start bitter family > > fights over what someone wrote about their Mom on the list. The > > writer has your permission and a fun story--names changed. The > > list member is cut out of the will. > > article was shown to Mom by someone who recognised the incident. > > 3. I refuse permission for anyone to lift what I say here without > > asking me. Anybody can lurk but giving a writer blanket permission > > to publish lurking info could cost you legal fees. > > > > ============================================================================ > Barbara Patterson [log in to unmask] > HSC 2J22 905-525-9140, ext. 22403 > School of Nursing > ============================================================================ > > >