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In response to a request for PD resources: Full Service Organizations American Parkinson's Disease Association (APDA) 60 Bay Street Staten Island, NY 10301 1-800-223-2732 extensive support group network, information & referral, research funding, walkathons, newsletters National Parkinson Foundation, Inc. 1501 NW 9th Avenue - Bob Hope Road Miami, FL 33136 1-800-327-4545 Nathan Slewett, Chairman of the Board Harold Kravitz, President information & referral, research funding, some support groups, newsletter Parkinson's Disease Foundation William Black Medical Building Columbia-Presbyterian Medical Center 650 W 168 ST NY, NY 10032 212-923-4700, 923-4792 1-800-457-6676 Mrs. William Black, Chair Lewis P. Roland, MD, Pres. Stanley Fahn, MD, Scientific Director information & referral, research funding (mostly in-house), some support groups, newsletter The Parkinson's Institute 1170 Morse Avenue Sunnyvale, CA, 94089-1605 Carole Tanner, MD, research director William Langston, M.D., director 408-998-2722 408-734-2800 408-734-8522 fax in-house research, information & referral United Parkinson Foundation 833 W. Washington Blvd. Chicago, IL 60607-2316 312-733-1893 Harold L Klawans, M.D. Judith Rosner, Executive Director research funding, information & referral, research newsletter APDA Young Parkinson's Information & Referral Service 1041 Foxenwood Drive Santa Maria, CA 93455 800-223-YPSN, (9776) Ms. Arlette Johnson referral Lobbying Parkinson Action Network (PAN) 822 College Avenue, Suite C Santa Rosa, CA 95404 Joan Samuelson 707-544-1994, 2363 fax 202-628-2079 Washington, DC office newsletter, coordination of PD lobbying National Coalition for Research in Neurological Disorders (NINDS) 151 Tremont Street Boston, MA 02111 Mr. Arthur Ullian NeuroNews - newsletter, general neurological research lobbying The National Foundation for Brain Research 1250 24th Street NW Washington, DC 20037 202-293-5453 202-466-2888 fax Support Groups Young Parkinsons Chapter of Massachusetts PO Box 141 Newton Center, MA 02159-0001 Ken Bernstein, Jim Mauer 617-964-1034 excellent newsletter Young Parkinsons Support Network - CA 506 Riviera Place San Ramon, CA 94583 Alan Bonander 510-828-9599 fax 828-5224 excellent newsletter Children of Parkinsonians (COPS) 11693 San Vicente Blvd., Suite 244 Los Angeles, CA 90049 310-476-7030 Jo Rosen newsletter & funding for respite care Southern Arizona APDA 1650 East Lowell, #302 Tucson, AZ 85719 605-326-5400 newsletter Please add or correct with any updated info or resources. Ken Aidekman