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Our 9 year old son Patrick has a rare progressive disease ataxia-telangiectasia which affects the cerebellum and T-cell functioning. When he was diagnosed in 1991, his father and I set up a non-profit foundation, the A-T Project, to research the nutritional & metabolic aspects of the disease (which essentially hadn't been addressed before). We need to set up a user group for A-T and I ran across yours. Does anyone have any advice or can anyone tell me how to set up a user group? How does one subscribe? Does someone manage it? I would really appreciate any references or info. There are about 400 kids diagnosed with A-T in the U.S. and families are few and far between. The support and exchange of information, like I see on yours, would be invaluable. Thanks ! Mary Cunningham-Howard 4310 Ramsey Avenue Austin, Texas 78756 512-467-8787 FAX 512-323-5161