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Kathleen wrote:
 
>She has been told that taking Selegiline may delay the  >progression of PD.
But what possible negative effects could >counteract this benefit? The
medication makes her feel a little >"fuzzy" and down, so she would rather not
take it at this point if >there are just as many health risks as benefits.
 
I'm beginning to feel like a walking ad for Elderpryl (same thing as
Selegiline). The first few days of taking this drug some folks feel an
amphetamine effect, which can leave one very drained and tired. As with most
drugs, it will take several days to overcome this feeling. It WILL go away.
 
>Also, Selegiline is an amphetamine. Might some of its positive
>effects be attributed to this?
 
Some of the byproducts produce an amphetamine effect. It technically is not
an amphetamine.
 
>The drug insert said there were no food/drink restrictions, but
> the printout from the pharmacy said that there may be adverse
> affects caused by cheese and red wine consumption. Has anyone
> any further information on this?
 
Once again, the pharmacy is WRONG. You would be doing a lot of folks a big
service by telling them this. The "cheese effect" is a warning applied to MAO
type A inhibitors. Eldepryl is a Type B. Totally different. There is NO
contraindication with cheese or wine or BBQ. The best advice is to pay
attention to the insert. If you have any questions, call the drug company.
They are more than willing to tell you, and mail you, lots of information
concerning this or other drugs.
 
Please note that I am NOT a doctor. I just get damn tired of the falsehoods
being spread about this drug by doctors and pharmacies that have not taken
the time to make certain their statements are correct. In the world of PD, it
pays to know the drugs we take inside and out, for many doctors don't. One
wrong drug, one bad bit of advice by those who are supposed to know, can mess
you up completely.
   A friend of mine with PD just had surgery and had to explain to the
doctors before they operated about the contraindications to the drugs she was
taking. THEY DIDN'T KNOW! Someone else I know had a slight tremor and was
given, by his doctor, 25/100 Sinemet 5 times per day. This fellow spent
several months in bed, completely overdosed, until a nurse recognized the
symptoms. The nurse had to actually argue with the doctor before he would
re-evaluate the patient. Thankfully, the family had another doctor in, who
took the guy off Sinemet. The patient is up, very active, and only on
Eldeprly and Amantadine now.
   Just because someone has an "MD" behind the name is no reason to not
question him/her. We are a very unique bunch, us PDer's, for we pretty much
self prescribe our own medications. To do this, however, we need to know, so
research all that you can. Buy your own PDR, study, read everything you can
get your hands on.
   Until some miracle happens, PD is with us for the rest of our lives. No
truer words can be said than, "Know your enemy."
   And eat beef.