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Greetings! Your case is much like ours. With a change in neurologist and style, my husband's "restless leg syndrome" is improved with a lowered dose of sinemet CR, now down to 1.5 daily, with a corresponding increase in Permax (Parlodel, bromocryptine, etc.). This change has been very healthy for him, in that he spends less of each day dealing with dynkinesia, etc. I realize these are not your problems, but the notion of reducing sinemet in favor of bromocryptine may interest you. Good luck. k. >Hello--this is being sent by Peter's wife/caregiver, Camilla. We heard >about this list at our local support group meeting Tuesday, and are glad >to join, for ourselves and for the group (it seems noone else has e-mail >access, so we'll pass things along, and relay queries from others in group) >Peter was diagnosed (or rather, diagnosed himself) five and a half years ago >but of course suspects he "had it" many years earlier. He retired in 1978 >from his job as Head Humanities Librarian at Miami University here in Oxford >OHIO (not Florida!) because of poor health. Camilla retired 10 years ago >from a counseling job. Our two daughters and their families also live here, >so that's a great comfort. At present, P's major problems are exhaustion >constipation, and concern over cognitive loss. He has very little tremor and >has never had dyskinesia. Currently he takes 4 Sinemet CR daily, and is a >"slow-responder", according to his neurologist--can miss a pill with no >immediate effects noticable. Over several days, he would get slower and more >stooped, if he continued to miss doses. We walk outside in good weather (no pro >blem with that) but his voice is weakening, and in combination with my own >hearing loss, that IS a problem. I am curious whether others out there have >similar experience with medication--no one else in our group seems to. >We'll be glad for any input, and will share info with our support group >also. Hope this brief "bio" is what you wanted. Thanks-- >Peter & Camilla Flintermann, Oxford,OH > > ====================================================================== Mrs. Karin M. Beros, MSO [log in to unmask] International and Area Studies voice: (510) 642-8542 Office of the Dean, 260 Stephens Hall fax: (510) 642-9466 Mail Code 2300 ======================================================================