Hi. I'm so glad to get access to this listserver. I'm 52 yrs. old and have
PD since I was 35. It has progressed slowly over these 18 years and I have
done pretty well. I continue to work, raise my family and carry on my life.
Recently, however, I got a mysterious inflamatory condition in my hip joint
that demolished the joint within about two years. Then in Sept I had hip
replacement surgery. The new joint was a standard ball and socket complete
hip. After two months it began to dislocate, despite a very "stable joint"
. It seems that the vissisitudes of slowness, dyskenesia, and dystonia
destabilized it. After four dislocations, I had a second surgery to install
a captured cup joint. It is now almost three months and I'm still in tact.
After the first surgery I was still in pretty good physical condition.
After the second, I have had to wear a brace and keep weigth off the leg.
This has resulted in a great loss of physical strength and atrophy of my hip
and leg muscels. I plan to get my strength back over time with excercise and
circumspection, but it seems to me that PD Patients should always be given
the captured cup as standard proceedure.
I have not been able to find any other YPD with experience in this.
There are a couple of articles on the subject of hip replacements in PD
patients who have had fractures which I got with help from the Med-line,
and another person on aol. If anyone else has had experience with this I
would really appreciate a reply.
I'm so glad to have this access, because I think there are lots of
things about PD that patients know, that the doctors either don;t know or
aren't saying because they don't have research evidence to support what to
them is anecdotal. Still we need to know. I spent a year suffering from
migraines, because my neurologist didn't or wouldn't tell me, what another
doctor finally told me, that Sinemet can interact with Estrogen (Premarin) to
cause migraines. AFter that I used the Estrogen patch and everything was
fine!
Thanks Barbara Patterson.
Claudia Elliott
