 |
 |
In reply to your query for resources...... Contact the following organizations for their free literature and bibliographies. You should also locate copies of: Parkinson's Disease: The Complete Guide for Patients & Caregivers Dr. Abraham Lieberman Fireside, Simon & Schuster Building Rockefeller Center, 1230 Avenue of the Americas, NY, NY 10020 Parkinson's Disease: The Mystery, the Search and the Promise Sue Dauphin Pixel Press, PO Box 3151, Tequesta, FL 33469 Living Well with Parkinson's Glenna Wotton Atwood John Wiley & Sons, Inc. Professional Reference & Trade Group 605 Third Ave., NY, NY 10158 Parkinson's Disease: A Guide for Patient & Family Dr. Roger C. Duvoisn Raven Press 1185 Avenue of the Americas, NY, NY 10036 The American Parkinson's Disease Association 60 Bay Street, Suite 401 Staten Island, NY 10301 (718) 981-8001 (800) 223-2732 The APDA has 47 Information and Referral Centers, 80 chapters, and more than 350 support groups located throughout the United States. They can help you find the right neurologist, provide you with booklets and pamphlets that will help you better understand Parkinson's disease, and set you up with the best speech and physical therapists available locally. Many centers offer lectures and/or clinics on a regular basis as well. In addition, these centers can refer you to social workers or lawyers that can help you plan financially. Perhaps most important of all, each APDA Information and Referral Center will help you connect with a support group in your area. Nothing compares with meeting someone who is going through the same things you are. The Parkinson's Disease Foundation. Affliated with Columbia University, the PDF places primary emphasis on research to find the cause and cure for Parkinson's disease. Parkinson's Disease Foundation William Black Medical Research Building 640 West 168th St. New York, NY 10032 (212) 923-4700 The National Parkinson Foundation. Known primarily for its diagnosis, treatment, and research venter in Miami, Florida, this organisation was founded in 1957 by the late S. Jay Levey and continues to be supported by Bob Hope, its honorary chairman. Affiliated with the University of Miami School of Medicine, the foundation offers an outpatient treatment facility that attracts patients from all over the country to visit resident neurologists and participate in physical, speech, and occupational therapy. Informational booklets and a quarterly newsletter are available upon request. The foundation has established research centers at Yale University, New Haven, Connecticut; The Graduate Hospital in Philadelphia, Pennsylvania; Vanderbilt University in Nashville, Tennessee; Baylor Medical School in Houston, Texas; University of Southern California and Loma Linda University in Los Angeles, California. National Parkinson Foundation, Inc. 1501 N.W. Ninth Avenue Miami, FL 33136 (305) 547-6666 The United Parkinson Foundation. Founded in Chicago in 1963 to keep patients educated about the latest developments in Parkinson's disease research, the UPF sends regular newsletters and other literature, usually free of charge upon request, to interested patients and caregivers. About half of its funds, raised through public donations, are spent on research grants. The UPF also sponsors regional seminars featuring internationally known neurologists and other experts on Parkinson's disease. United Parkinson Foundation 220 South State Street Chicago, IL 60604 (312) 922-9734 Best wishes, Ken Bernstein