Hi Susan,
Your father sounds like a pretty remarkable person (playing tennis at
age 79 with PD)! I'm sorry to hear he's developed the recent new
problems.
Since you are new to the list, you may not be aware that all postings
are archived and information contained therein may be retrieved. Many
of the things you mentioned (.e.g, Restless Leg Syndrome, blue glasses,
diet, etc.) are of concern to many, and have been discussed at length.
Below you will find a copy of an excellent posting from John Cottingham
describing exactly how to get information from the archives. (I have
used it myself successfully).
Re Restless Leg Syndrome, I think I remember reading that caffeine and
milk products may contribute to this condition. Other subscribers, and
your search of the archives, may turn up other suggestions.
Although this isn't specific to your talents, there is a bill set to
be reintroduced to Congress on Thursday (Apr. 6), the "Morris K. Udall
Parkinson's Research, Assistance, and Education Act of 1995", which
stands to benefit the entire Parkinson's community (patients and
caregivers). Just writing to your Senators and congressperson urging
them to support this bill would be a good way to start getting involved.
Let me know if you would like more information: I'm just starting to
get involved myself.
Best wishes to you and your parents.
================================================================
Margaret Monty [log in to unmask]
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From: John Cottingham <[log in to unmask]>
Subject: How to find information in Parkinson Archives by E-mail
This is a periodic posting on Finding Information In Parkinson Archives By
E-mail. Changes in this edition include the removal of the index command
from the second message to the listserv.
Date of Posting: March 2, 1995
For assistance E-mail [log in to unmask]
Queries discussed in this article should be addressed to:
[log in to unmask] <<< AND NOT TO >>> [log in to unmask]
Start of Finding information in Parkinson Archives by E-mail.
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Almost any thing discussed in Parkinson's can be found using the listserv.
Every message posted to the list is archived in Notebooks which are simple to
search by E-mail.
All that it takes to find anything ever discussed in the PARKINSN
(notice the spelling) database uses the following method.
Send mail to: [log in to unmask]
In the Subject: put anything or nothing at all(this isn't read by the machine)
Enter the following information:
//DBlook JOB Echo=No
Database Search DD=Rules
//Rules DD *
select blue glasses in parkinsn
index
Don't put anything else in the message even your signature.
Explanation:
The word SELECT(caps just for emphasis) is a command that the listserv
understands to tell it to look for the following words just before IN(caps
again just for emphasis). In this test message, the words, blue glasses are
what we want the machine to look for. The words, in parkinsn tell the listserv
where to look for blue glasses, which is in the parkinsn database. The
parkinsn database includes all the notebooks which hold the Parkinson
messages. Don't confuse the word Parkinson with the database name which is
parkinsn. The word INDEX(caps again just for emphasis) is a command that tells
the listserv to send you a list of messages that contain the words you
specified.
You will receive a message back from a listserv which will tell you the number
of hits that resulted from your search. Below this, a list of
messages will be given. The number in the first column is important. Each
message will have a unique number.
If you send the example of blue glasses you will receive the following
message.
> select blue glasses in parkinsn
--> Database PARKINSN, 26 hits.
> index
Item # Date Time Recs Subject
------ ---- ---- ---- -------
000595 94/06/19 10:21 50 Dyskinesia Test
001380 94/12/14 17:33 74 Asthma and PD
----------------snip-----------------------------
001760 95/02/03 10:04 60 seeing
001802 95/02/08 09:06 12 Re: light and blue glasses
001809 95/02/08 19:48 27 Re: light and blue glasses
001812 95/02/08 21:10 25 Re: light and blue glasses
001821 95/02/09 15:25 10 BLUE GLASSES
001846 95/02/13 09:35 11 Re: BLUE GLASSES
001850 95/02/13 14:30 129 Finding Information In Parkinson Archives By E-mail
Each one of these messages will contain the word blue glasses in either
the subject or the body. The Recs column is how many lines each message
contains.
How do I get these messages?
Enter the following information:
//DBlook JOB Echo=No
Database Search DD=Rules
//Rules DD *
select blue glasses in parkinsn
print all (THIS IS WHERE YOU ENTER THOSE UNIQUE NUMBERS THAT
WERE IN THE FIRST COLUMN) Separate the numbers with a space.
Example:
print all 1821 1846
>From experience, some of the posts can be quite long and the listserve will
restrict the number of lines it will send per request. You can safely
retrieve up to about 700 lines of messages with a single batch command and
have it all arrive in a single message without truncating. From a practical
standpoint, if you save the message to a text file, it is easy to edit the
message numbers in the print all line without having to retype the whole
schmaltz each time.
Can I ask more than one question in the first message requesting a parkinsn
database search?
Yes.
//DBlook JOB Echo=No
Database Search DD=Rules
//Rules DD *
select blue glasses in parkinsn
index
select left foot dragging in parkinsn
index
In this example, another search would be made for left foot dragging and an
index would be returned. Receive those messages the same way with the print
all and then the unique message number. Remember, if you request a number of
messages that contain more than about 700 lines, you may not receive all of
them.
Also, when you receive the messages and wish to correspond by E-mail with the
posters, the addresses may not be valid. In the last year and a half that I
have been on the list, I have gone through 4 or 5 providers. There is a way
using what you have learned about getting information from the parkinsn
database to find a newer address.
Enter the following information:
//DBlook JOB Echo=No
Database Search DD=Rules
//Rules DD *
select * in parkinsn where sender contains cottingham
index
>From the list of messages received that contain that match, pick the newest
one and use the print all command in another message to get the newest address.
If anyone finds one piece of information that they desperately needed,
compiling this message was worth it.
"God help us if we don't help one another"
John Cottingham [log in to unmask]
Located in Sunny Oklahoma City, Okla.USA
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