There is a support group for those with Shy-Drager Syndrome (SDS).
The caregivers are very heavily involved in this group as well. I met
several wonderful male caregivers at the last SDS conference at Mayo
Clinic. Dorothy Trainor-Kingsbury is the founder of the group and she
will be happy to provide names of other families coping with SDS in
the area where you live. Another way to receive information and
support is by subscribing to the SDS Advocate. It is a newsletter
published for persons interested in Shy-Drager Syndrome and related
disorders. The two volunteer editors are Tara M. Fettig and Nancy
Mansavage.
>SHY-DRAGER SYNDROME SUPPORT GROUP
>Dorothy Trainor-Kingsbury
>1607 Silver Ave. S.E.
>Albuquerque, NM 87106
> 1-800-737-4999
>SDS ADVOCATE
>P.O. Box 211
>Hartford, WI 53027
Happy networking! :-)
Sylvia Dickinson, R.N., M.S.N.
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