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Dear Curtis :  Here are the addresses you want for your daughter's report.  I
hope this sparks some real interest and that some day she will be a
 neurologist specializing in PD - or a scientist who will find a "cure" for
us.  Sorry for being so slow sending this, but my only other speed is slower.
 
American Parkinson Disease Association
60 BayStreet, Staten Island NY 10301
800 223-2732
 
United Parkinson Foundation
360 West Superior St., Chicago, 60610
312 664 2344
 
Parkinson's Disease Foundation
William Black Medical Research Building
650 West 168 St., New York, NY10032
800 457-6676
 
National Parkinson Foundation, Inc.
1501 Ninth Avenue NW, Miami FL 33136
800 327-4545
 
California Parkinson's Foundation
Clinical Center for parkinson
2444 Moorpark Ave., Suite 316
San Jose, CA 95128
408 998-8366
 
Michigan Parkinson Foundation
3990 John Road, Detroit MI48201
313 745-2000
 
Central Ohio Parkinson Society
3166 Redding Road, Columbus OH 43221
614 481 8829
 
 
All these PD organizations publish newsletters and send out pamphlets
covering all phases of PD and how to cope.  It is amazing to me that so many
organizations can survive the financial crunch everyone feels.  It  makes
sense that there would be a lot more money for Parkinson's Disease research,
education, patient care and advocacy, if all would join together under one
umbrella.  If the PD organizations have trouble trying to decide  on who
should run this new mega group, we parkinsonians would be glad to give our
useful advice and then we could put it to a vote.  For sure a lot of
downsizing  needs to be done for efficiency and financial reasons.
 
We need to make a bold and cohesive statement to be recognized like the
American Cancer Society, American Heart Association, American Red Cross,
Multiple Sclerosis Society, Alzheimers Association, Arthritis Foundation.
 Those are names we recognize.  If I die and my newspaper obituary states
that in lieu of flowers a donation be made to Parkinson's Disease - just
where do you suppose the donation would go?  There is nothing in our
telephone book re PD.  MS is there as are the others above but no PD.  So my
mourners would just spend their donation on a party to celebrate my life.  I
would rather have that money spent by One Big PD organization
for research to find a cure (then maybe I won't die).
 
Barbara Yacos, RN
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