 |
 |
oops I guess I am not suppose to send this to the list server? I hope this is right?? >To: [log in to unmask] >From: [log in to unmask] (Lyle Tweedy S.O.S Support On Site Inc.) >Subject: Hello Everyon > > >Hi there > > My name is Lyle Tweedy, this is the first list server I have ever subscribed to so please bear with me as I orient myself to how it all works. I was asked to send an intro to everyone which also gives me a chance to exprees my questions and opinions. > >I have joined this service to find out more about parkinsons as my father has had it for about 10 years now and although he has been fortunate enough to experience very little degridation in the past I fear he is starting to accelerate in his decline of health. In the past two years parkinsons has moved from what seemed to be a mild tremour in his right side (mostly arm) to gradualy aflicting his right leg and most recently in his left side and facial and neck areas. He seems to be handling PD very well through this experience but 2 years ago developed a rather large kidney stone which doctors have attempted to remove around 8 times through microsurgery(I think that is what it is called) and only in the last couple of weeks have had success. Needless to say he has been dealing with alot of pain and with all the bleeding from the surgery and since he has been unable to sleep at night for 2 or 3 months know, he is totaly frustrated and stressed out. He also has devloped, I think it started a year ago, a sensation in his right leg which he terms as a numbness. And to top it all off he now has the sensation of thousands of bugs crawling under the skin of his shoulders and upper arms. I apologize for being so graphic but he is at wits end and I fear he is even slowly having suicidal tendancies. The doctors have given him various types of sleeping pills all of which do not work and finally my wife and I did what we know we should not have but gave him a sleeping pill of my wifes to try. He tryed it (restoril) and finnaly was able to sleep. Unfortunatly this only lasted 2 or 3 days. We also let him try an Ativan which is a type of tranquilizer as we thought he may be having panic attacks and we both have had experiences with anxiety as my wife has suffered from anxiety and depression for 2 years. The ativan was a life saver for him. He was at the hieght of this awfull feeling and tryed one and felt great and was able to sleep one of his few complete nights. He imediatly called the doctor to discuss Ativan and was told that they were far to dangerous and he subscribed nozinan instead, which upon investigating I found out that it has a side affect of Parkinsonism tremours in the face and also reduces the effectiveness of antiparkinism drugs. Am over reacting by thinking this doctor is not understanding the pain and frustration of my father and not doing everything he could? Has anyone else experience things I described above? Does anyone have suggestions for what can be done to help. I am of the understanding that Ativan is mainly dangerous because of its high dependancy level, and I am of the feeling that my father is 77 years old and does not have all the time in the world and should be allowd to enjoy his days as much as possible. > >I thank you all in advance for any advice you have to offer or experiences to share. I hope this was the correct forum and time to voice my frustrastions and concern. Please feel free to send me email directly or via the list server. > >Lyle Tweedy ([log in to unmask]) >Ottawa, Canada > WhatUp coming to a web in your hood....stay tuned