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Thanks to all:
 
Back on the 18th of April I wrote about my problems of concentration and
distraction.  I was overwhelmed with the response I received from the Digest
members.  I think I counted 20 responses, some on the board and some sent
directly to me.  This truly is a caring group.  Many ask questions, some
responded saying they had similar problems and some had suggested solutions.
As a test of your memory I thought I would answer the questions and thank all
of those who  responded.  I will say I had one suggestion that I have tried
to implement and I think it is working at improving my ability to concentrate
and avoid distraction.
 
Donna Kipp:  There is no question that our ability to recall is severely
impaired by non-optimal medication.  ADD, although it is currently a
catch-all, is showing up in anecdotal reports in children of whose
grandparents have PD.
 
Martin Jones:  Thanks for telling me I am not alone.
 
James Cordy:  Aging, retirement and PD all influence our lives in similar
ways.  Which one does what is difficult to know.  It is nice to have multiple
things to blame for whatever ails us.
 
John DeGelleke:  Your memory is excellent.  I wrote about problems in
understanding initial stimuli.  More is being learned about initial stimuli.
 It is known that we are unable to immediately recall initial comments. This
information is recallable later.  The problems your father has with time
sounds very serious and well beyond the mental problems of IPD.
 
Ronald Vetter:  I had difficulty concentrating on your discussion.  You are
well beyond my simple understanding of the process.  I did understand your
last paragraph because you ask if I have anger when interrupted.  I did at
one time.  Any interruption was frustrating and could result in anger.  I
have been on Paxil (SSRI) for a number of months now.  This has taken the
edge off the anger issue.  I do get startled by my wife or son when I am very
deep into an activity.  Sometimes this is like electric shock and I am not be
able to return to the previous activity.
 
Stephen Holahan:  I totally agree with you.  If one has too many irons in the
fire, nothing gets done.  It is important to focus on one or two irons at a
time.  Then something will get done.
 
Claudia Elliott:  I am learning more about the brain and the remarkable power
it possesses.  Western medicine believes in pills.  I am finding more
physicians augmenting pills with other forms of "healing."  I think we will
see more of this in the future, rather than less.  The adverse side effects
of pills can be stronger than their healing power.
 
Joan Yarborough:  Your humor is worth repeating.  "Belief in the Hereafter"
is when you keep asking yourself "Now, what am I here after?"
 
Susan Paul:  I am 54 years old.  If you are having these problems at 44 and
do not have PD to blame, we would like to know your status 10 years from now
(if you remember, we will have forgotten all about this).
 
Jon Stedman:  Jon, are you sleeping again?
 
Camilla & Peter Flintermann:  You mentioned that mornings are Peters slowest
and the afternoons are better.  Later you say he is on Sinemet CR 4x daily.
 The reason Peter is non-functional in the morning is his meds.  I will write
about how to take pills for PD one of these days.  Suffice it to say that
there are four phases in daily cycle; startup, maintenance, shutdown and
sleep.  Peter does not do a "startup."  The result is missing half of the
day.
 
Carey Payne:  Glad we are able to help you understand what is happening (if
we know?).
 
Colman Mullin:  Depression is not an adverse side effect of PD.  It is as
much a part of the disease as bradykinesia, rigidity and tremor.  Further,
the causes of depression may also be the cause of the poverty of movement.
 Many have found antidepression medications have corrected some of the
poverty of movement.  I expect to see more on this in the very near future.
 
Ed (ED1912):  Thanks for letting me know I am not alone.  Yes, I have been a
patient of The Parkinson's Institute since about 1989.  Drs. Tetrud and Kurth
did research together back in 1991 on duodenal infusion.  Since than I see
both neurologists; Dr. Kurth at Barrow Institute in Phoenix and Dr. Tetrud at
TPI in Sunnyvale.
 
Marvin Weiss:  As a CPA lapses in memory must be fun around tax time.  I
didn't know that CPAs never file their own tax return on time.  Once the
pressure is off, you can be more creative with your own return !!!!!!!
 
Bob & Nancy Martone:  Your approach of reminders by messaging, asking people
to give a reminder close to the time of the event, keeping a good sense of
humor and realizing insomnia and all the meds we take only compound the
problems make good sense.  I really appreciate doctors who call the day
before an appointment to remind me.
 
Bill Phillips:  Thanks to Bill for solving his problem and sharing the answer
with me.  I want to share it with everyone as it works.
 
"ALAN:  I had trouble concentrating because I wasn't getting enough sleep.  I
went off eldepryl and that worked for two weeks.  Then the doctor gave me a
muscle relaxant (for rigidity),  Ativan 1mg. That works the best for me out
of the various options he could choose from.  This helped keep me asleep and
slowly my mental functions returned.  Sleep is very important for your
overworked brain cells. Make sure you are getting enough.  Don't go by how
tired you feel, sometimes I can go for days on little sleep and feel normal."
 
John Wherry:  John, we are not alone.  You had suggested I write about
concentration and distraction (or something similar) and look at the
wonderful response.
 
Fred Schneyer:  Your question concerning your brother, age 40, who is experien
cing some short term memory loss along with some minor motor-skill problems,
may have at least two possible answers: (1) just being around someone with PD
can influence one's thinking about all that ails them.  The major concern is
that the aches and pains are the start of PD.  This is said to be true what
ever the disease.  (2)  Dr. Edwin Montgomery of the U. Of Arizona recently
wrote about early signs of PD.  The three signs were (a) depression, (b)
wrist movement and (c) I don't think I should tell you.  Your bother said he
had signs of depression and problems typing (wrist).  He did not mention the
third sign, so maybe it is best not stated.  If you think this answer smells,
but can't smell it, you have the third sign according to Dr. Montgomery.
 
I thank each of you for your response and your willingness to share.
 
Regards,
Alan Bonander ([log in to unmask])