I am forwarding this very exciting message from Jean-Pierre Lucas to the
list with Jean-Pierre's permission. I am sure everyone will be as
excited about it as I am. Barb
From [log in to unmask] May 3 13:00:31 1995
Date: Tue, 2 May 95 20:23:17 +0200
From: Jean-Pierre Lucas <[log in to unmask]>
To: Barbara Patterson <[log in to unmask]>
Cc: GUILLOT Marcel <[log in to unmask]>,
Michel Godard <[log in to unmask]>
Subject: Parkinson Europe Networking Group birth
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Hello Barbara
My name is Jean-Pierre LUCAS and, as his newly elected Chairman, I am
happy to report to you the birth of the European Parkinson Disease
Association so called "telematics steering group".
The Parkinson Europe Networking Group ( PENG!), as it is now named, has
seen life in Utrecht on April 21st.
Its programme seeks to allow as many parkinsonians, families and
associates as possible in the different European countries to benefit from
the most effective use of information technology.
It wants to contribute enriching their own information but also their
social and professional life by giving them aceess to data bases and
enabling them to collect and dispatch relevant information.
The main axes of the programme are the following
1. set up networks accessible to both english speaking people and people
speaking only their national languages,
2. find ways to educate Parkinsonians and the Associations on new
information technologies
3. test and select the most effective and user-friendly tools and methods
through local projects
4. enable parkinsonians in each country to take advantage of international
experience through exchange of ideas and development of comon tools
5. enable parkinsonians to continue making active contribution to both
social and professional life through networking.
5 project leaders have already been designed to work on the following
project:
1. setting up a computerized BBS in an EPDA network
2. defining, gathering, and disseminating parkinson's and related
information by computer databases (PIBI) accessible by datalines,
telephone and other means
3. increasing usage of information technology through proactive collection
of hardware and software as well as appropriate training
4. increasing awareness of the Parkinsonian condition through Culture,
Arts and Education initiatives and use of multimedia technologies
5. Enabling Parkinsonians to continue professional and social activities
through the developpement of commercialised services through telewaorking.
I understand that you are going to meet one of our project leaders, on May
13.
As a matter of fact, Kees Paap, Chief Officer for the "Parkinson
Information Bank" in Europe is going to speak during the spring
conference of the Toronto Chapter of the Parkinson foundation of Canada
and could give you additional detail about the PENG.
I would be most interested to know if you are aware of similar experiences
elswere and to share information on those subjects with interested people
and institutions.
Also, since I have a chance to do it, congratulations for your BBS. It
looks as a very interesting one!
regards.
Jean-Pierre LUCAS
---------- Forwarded message ----------
Date: Thu, 4 May 95 00:16:03 +0200
From: Jean-Pierre Lucas <[log in to unmask]>
To: Barbara Patterson <[log in to unmask]>
Cc: GUILLOT Marcel <[log in to unmask]>,
Michel Godard <[log in to unmask]>
Subject: Re: Parkinson Europe Networking Group birth
Reply to your message of Wednesday May 3, 1995 15:55 +0200
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<Hello, Jean-Pierre: Congratulations on the birth of PENG!! Thank you
<for your very interesting and exciting message. Do I have your
<permission to post your message to the PARKINSN list? I am sure our 800+
<members will be as interested and excited as I am.
<I an looking forward to meeting Kees Paap this weekend. Thank you for
<all your work toward compiling a pool of information about Parkinson's.
<Many people will be helped and will learn from this.
<Barb
Thank you for your congratulations.
You certainly may post my message to the Parkinsn list.
We have just come to life and we have a lot to learn to be able to
implement successfully each project of the whole programme.
Coments and advices from your list members are most welcome and 8OO+
listmembers, that is a lot of people to share experience with.
Also, if it can give ideas to others and contribute improving the daily
life of the Parkinsonians that would be great.
Jean-Pierre
