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Joanne Nelson, founder of Wellness Interaction Network in Los Angeles asked
me to forward this important message along to the group.
 
DATE; May  8, 1995
FR0M: Kassy Perry
2300 N. Street
Sacramento, CA 95818
RE: FDA Drug Lag
 
I am working with a number of voluntary health and provider organizations
to identify patients who are willing to talk about the need for FDA reform.
Specifically, I am interested in finding patients or family members of
patients who are concerned about "drug lag" -- the fact that medications
and devices are often available in other countries years before the FDA
makes them available in the U.S.
 
        Examples are:   Cognex -- The Alzheimer's community had to fight to get
                                                       FDA approval.
                                Imitrex-- A migraine rnedicine that is
available in tablet form
                                                        in Canada, but only
in the iniectabIe form in the U.S.
                                Tenidap-- An arthritis medication that is
now available in
                                                        Europe.
 
The patients should be willing to spend two days on Capitol Hill meeting
with Congress, testifying at hearings and meeting with FDA officials. As of
today, we have no times for these meetings.
 
If you have any questions, please give Kassy Perry a call at (916) 443-3464
or FAX (916) 443-2232.  Thank you for your assistance.