Last year Alan Bonander did an excelent job of reporting about and
from the PAN Public Policy Forum held in Washington DC.
This year he's not attending, and, since no one else has posted
the current Forum agenda, here goes......
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FROM MAY 4 PAN LETTER TO ALL FORUM PARTICIPANTS:
1. AGENDA: ... Since much of the exact scheduling happens very close
to the date of the event, there will be more details and changes
prior to the forum. We guarantee that the agenda will be packed with
productive and stimulating activity. ...
2. HOST COMMITTEE: The National Capitol Chapter of the APDA and the
Young Parkinson's Support NEtwork of Northern Virginia have
combined forces as the Host Committee for the Forum. ...
Registration will be in room SC-5 of the U.S. Capitol.
Most participants will stay at the nearby Hotel Washington.
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Invisible No More II
D.C. Public Policy Forum
1995 AGENDA
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Monday, May 15
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8:30 Registration and continental breakfast
Morning Session
9:00 - 12:00 Welcome, introduction to the Forum
Introduction of participants
- Joan I. Samuelson, Esq., President, PAN
Welcoming address
- Member of Congress (to be announced)
Questions
The Morris K. Udall Reaserch & Education Act --
status and strategy in the current Congressional climate
- Suzanne C. Hildick, Legislative Director to
Senator Mark O. Hatfield
Appropriations 1995 -- how federal research funding works;
the role of the Parkinson's community in the process
- Key Congressional Staff (to be announced)
12:00 - 1:30 Lucheon Address
The need for Parkinson's Community Advocacy in
the Government and the Media
- Morton Kondracke, Editor, Roll Call; T.V. panelist,
"The McLaughlin Group," and the winner of the 1994
Washington Post "Crystal Ball Award"
Afternoon Session
1:30 - 4:30 Remarks from member of Congress
Review of breifing materials and 1995 action agenda
Questions
- Joan Samuelson
Advocay training I
Evening Free time. Informal social and networking options
to be coordinated by Host Committee (Linda Hendricks,
Sue Carter, and Rusty Glazer)
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Tuesday, May 16
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Morning Session
9:00 - 12:00 Announcement, questions
The Clinton Administration and its impact on the
Parkinson's community agenda
- Cindy Lebow, Senior Policy Counsel, Department
of Justice, Civil Division
- Robert K. Neuman, President, Neuman & Company
Questions
The Food and Drug Administration and other agencies;
how the PD community can speed a breakthrough
Research breakthrough potential for Parkinson's:
research at the National Institutes of Health and
in the private sector
Advocay training II
12:30 - 1:30 Luncheon Address
- Honorable Mark O. Hatfield, U.S. Senator (R-OR)
2:15 - 2:45 Tour of the Capitol
2:00 - 5:00 Participant meetings with Members of Congress
Evening Free time. Informal social and networking to
coordinated by the Host Committee.
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Wednesday, May 17
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8:00 Optional White House Tour
Morning Session
9:30 - 12:00 Continental Breakfast
Questions and debriefing on Hill visits
1995 Parkinson's community strategy --
overview and questions
- Joan Samuelson
Project Link -- the entire Parkinson's Community
working in coalition
- Staff and Foundation representatives (to be announced)
Brainstorming and work assignments
Internet group briefing and meeting
12:00 Adjournment
Evening Morris K. Udall Awards dinner
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I am not a Parkinsonian, but I do care for an aunt who has
PSP, a PD+ disease. Since I am the most able-bodied of our
140 family Sun City, Arizona (a retirement community), PD
support group, I am being sponsored as their advocay delegate
and representative to the forum. We all feel that the next
generation could greatly benefit from PD advocacy today.
PAN is also helping sponsor my trip.
I hope that participants or PAN staff will continue to update
PARKINSN listserv members during and after the Forum as Bonander
did last year.
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