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A problem related to eligibility for pallidotomies: my mother was recently
evaluated for a pallidotomy and told that she wasn't sufficiently bad off.
That is, Sinamet seems to be controlling her tremor enough to exclude her from
consideration.
 
The problem is that we believe the Sinamet is greatly aggravating
her mental confusion.  She can't keep track of time, she asks questions over
and over, she hallucinates, is withdrawn and without motivation--all very
opposite to her former personality.  Her life is reduced to the house, and her
husband is under enormous pressure.  She is miserable.  I can't help but feel
that the specialists in Philadelphia ignored or were oblivious to this
dimension of life with Parkinson's.  I understand that post-pallidotomy
treatment also includes continued Sinamet, but we are grasping at straws and
hope that a lower dose might permit her some regained mental clarity and some
restoration of her former vibrant life.
 
I am frustrated that the medical thought about pallidotomy does not
seem to consider that tremor alone is not the only problem,
that the drugs can be ruinous, and getting off of them a
major goal.  If they even acknowledged the problem their ultimate judgement
to refuse pallidotomy would seem more acceptable, but it seems that they
don't even think about it.  Controlling tremor appears to be the goal, and
everything else (like mental incompetence) a relatively minor side issue.
Never mind that the "relatively minor side issue" has become an all-consuming
worry and round-the-clock job for all those around her.
 
Has anyone else confronted this problem re surgical responses to PD? Thoughts?
 
Virginia Tilley
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