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I've gotten only error messages in past after composing wonderful, detailed intro...so this a short & sweet "just the facts" test. My name is Kathy Igou.I live in Atlanta, Georgia and my Dad (65 yrs, from Columbus, Ga) has been diagnosed with Progressive Supranuclear Palsy (PSP)- a Parkinson's plus syndrome which has many symptoms of PD (except for tremors) but does not respond to Sinemet & like drugs. He is being treated by Dr. Wats at Emory in Atlanta. He was diagnosed 3 years ago and the disease is slowly progressing-which I understand makes us more fortunate than most PSP patients. I've been lurking since April and have received excellent info as well as inspiration & ideas from the group. Dad's last Dr. appt. was the best exchange of info we've had because we were better educated about the drugs, terminology, and current research. For once, Dad, my mom, & my 3 sisters felt "proactive" about our family challenge. Does anyone know of others with PSP? Since April, I have only been able to connect with one other PSP family-from Canada. Our Dr. is treating only 40 PSP patients in his clinic and our Canadian contact knows of no others being treated by the 17 neurologists in her area. Because PSP is relatively rare, there is no support group, newsletter, etc. I am hoping that other PSP patients may have joined this group as I did, hoping to find others within the PD family. Dad was thrilled to learn of our PSP contact...as was my mother who is looking forward to sharing treatment info as well as dealing with the day-to-day progression. Thanks again to all of you in this group. This is an inspiring group...no "pity party" types...and I just know that parkinson's does not have a chance against such a dynamic group! So much for "short & sweet". Hope this goes through. Kathy Igou Atlanta, Georgia