 |
 |
Dear Don: As a fellow pallidotomy receiver I applaud your efforts to keep the record straight and tell it like it is. My unilateral (right side) pallidotomy was done in Sweden on May 23, l993. Too bad I couldn't get a bilateral, but it wasn't being done then and in fact pallidotomies wern't being done in the states at that time. A bunch of us went to Sweden for the procedure. Were we the advance guard? I too had a good result. Of course it would have been perfect with both sides done as you did. However I would not have joined you skydiving. I put a small plane into a dive once and that ended any desire to dive me in the air any way any how. You are taking four Hydergine (an ergoloid mesylate) tablets a day - what strength? And why? It is supposed to improve the supply of blood to the brain which I suppose is o.k., and it might stop a migraine headache, but what else does it do? Didn't you say some people found it helpful for restless leg syndrome (RLS)? I wonder why and how? At the moment RLS is a bigger problem for me than PD. I am fast resembling a zombie from lack of sleep. Keep us up to date on your pallidotomy results. It is helpful to those contemplating the procedure. Sometimes I wonder where we'd be if we hadn't ressurected pallidotomy. I'd probably be wheelchair bound as I fell a lot and was a mass of bruises. Did you meet Moira MacPherson from Halifax two weeks ago? Dr. Iacona did a successful bilateral pallidotomy and she and Peter and the two boys are some happy fellas. She is an artist and I'm sure we'll see lots of her stuff now. Regards, Barbara Yacos