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Virginia,
 
There is a company called NORD (National Organization for Rare
Disorders) located on the internet that is really helpful with
medications and helping to keep cost down as well as  contacting the
drug company to see if they have and indigent program or even you
neurologist maybe of some help.  I found that NORD was the best help
for me.
 
Good Luck and let me know how you come out.
 
Dar
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