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Dear Netters: This is yet another proof of the value of the Pallidotomy. There's still no sign my husband is interested in pursuing the possibility of this surgery, but a glance at the videotape might help him think about it. What are the chances of making it available (at a price, of course) to people in California? k. >Date: Thu, 29 Jun 1995 23:53:47 EDT >Message-Id: <[log in to unmask]> >Subject: Nancy Martone Pallidotomy > >Nancy has continued to improve on her left side as a result of the >unilateral Pallidotomy performed on May 23, 1995 by Dr. Gildenberg. She >remains free of dyskenisia on that side and also shows improvement in >tremor, bradykenisia and freezing. She has been able to tolerate >Sinemet CR one half of a 50-200 without disabling dyskenisia. We are >both getting more sleep at night, upto 5 hours with out interruption. >Prior to surgery the best we did was one and one half hours. By any >measure, the left side has benefited significantly. That s the good >news. The bad news is that we really did not know just how bad her >symptoms had become. Now that she has one very functional side and one >very dysfunctional side, she is experiencing major back muscle and hip >pains from the imbalance created by the unoperated side. Message >therapy has not been able to provide relief and visits to the >chiropractor were also no help. Basically non of us know what to do >with this body that has vastly different needs between the left and >right side now. > >Yesterday we visited the neurosurgeon and jointly concluded that >Pallidotomy surgery on the other side was the proper course of action >and this will take place next Friday July 6, at St. Luke s Hospital in >Houston. God willing our experience will be as rewarding this time as >it was in May. Having watched Nancy over the past five weeks, there is >certainly a case for the bilateral procedure that Dr. Iacona has >pioneered. It may be appropriate for people like Nancy who suffer >equally on both sides. > > I have just about completed a VCR documentary on Nancy up to this >point and plan to add next weeks experience to it. It is over 50 >minutes of material. We plan to make it available through the Houston >Area Parkinson s Society around August 1. If all goes well we will be >on vacation in New Jersey July 14-22 and are working on plans to visit >some support groups in the New Jesey/New York area and preview the >video. Of course this will depend on how well Nancy is doing after the >surgery on July 6. > >Please keep Nancy in your thoughts and prayers next week. > > ====================================================================== Mrs. Karin M. Beros, MSO [log in to unmask] International and Area Studies voice: (510) 642-8542 Office of the Dean, 260 Stephens Hall fax: (510) 642-9466 Mail Code 2300 ======================================================================