SAMPLE LETTER TO CONGRESS Date The Honorable ____________________, M.C. United States House of Representatives Washington, DC 20515 OR The Honorable ____________________ United States Senate Washington, DC 20510 Dear Representative/Senator _________: I/we seek your support for an action which will benefit the Parkinson=92s= community=92s great need for increased research support. I/we ask you to= co-sponsor the Morris K. Udall Parkinson=92s Research and Education Act. = The bill, S.648 and H.R. 1462, was re-introduced on April 6, 1995 by its principal sponsors, Mark Hatfield and Henry Waxman, and a bipartisan grou= p of House and Senate co-sponsors. = I [my husband/wife/parent etc.] suffer from Parkinson=92s disease, a progressive neurological disorder that destroys brain cells controlling m= otor function. Available treatment only partially alleviates the resulting stiffness, tremor and slowness of movement. Eventually it leaves its vic= tims unable to walk, to talk, even to move. [Revise for your personal story if= you wish] In addition to these devastating human consequences, Parkinson=92s financ= ially cripples our nation: $6 billion in direct and indirect costs per year. Meanwhile, U.S. support for direct Parkinson=92s research currently amou= nts to a mere $26 per year per patient, which is far less than most other diseas= es receive. = This is unfair to the Parkinson=92s community, and it ignores a tremendou= s scientific opportunity. Scientists say they have the potential for major= treatment advances, and very possibly a cure of Parkinson=92s, in this de= cade. But this will not happen without adequate research. The Udall bill would authorize the necessary expansion of Parkinson=92s research through strengthening of the NIH research effort, establishment = of a series of Parkinson=92s research centers nationwide, and other programs including Morris K. Udall Research Excellence Awards and a centralized da= ta bank. Please do not allow our community to be ignored any longer. To restore o= ur hope, and eliminate a huge economic burden on our government and economy,= we ask that you add your name as a co-sponsor of the Udall bill. = Thank you for your attention. Please respond at your earliest convenienc= e. Sincerely, (Your name address and phone number)