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On Thu, 27 Jul 1995, Cindy Jones wrote: > J.R. Bruman wrote: > >The recent exchange of anecdotes etc about various environmental toxins > >brings up something I have mentioned before: a nationwide, or even > >worldwide, registry of PD cases. There are scientists trying right now > >with limited data to correlate environment with incidence. Such a > >registry is not a task for amateurs. It would be a BIG project facing > >lots of difficult problems, such as what questions to ask, how to preserve > >privacy, how to account for incipient or undiagnosed cases, how to exclude > >cases that are not really PD, and so forth. But if environmental causes > >are important, as many people suspect, such a registry might reveal the > >answers we are all looking for. I think if not by some government organiz- > >ation (save us!) perhaps it could be undertaken by one of the civilian > >support institutions, if enough people start asking for it. Comment? > > > > > I agree. So, who do we ask? And, where do we start? > > > /\ /\ Cindy C. Jones > \/ \/ ABAC Computer Center > ABAC 31, 2802 Moore Hwy. > /\ Tifton, GA 31794 > PHONE: 912-386-3116 > \____/ FAX: 912-386-7339 > [log in to unmask] > > RULES FOR LIVING: > 1) Don't sweat the small stuff. > 2) EVERYTHING is small stuff. > The msg from Rita Weeks on today's List illustrates just one of the obstacles to a widespread PD registry. I think the best thing for us is to try to develop interest among professionals. There seems to be a big conference every year or so, where perhaps they could have a panel discussion of issues such as advisability, feasibility, responsibility, and methods. It will be a long road, and all I can suggest for now is writing to whomever seems appropriate when the opportunity arises. J. R. Bruman (818) 789-3694 3527 Cody Road Sherman Oaks, CA 91403