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I attach two items of e-mail between Nic Marais and myself. As Nic points out
there maybe others on the list who could benefit.
MY MESSAGE
Nic
Re your message of 1 August. I am 43 and still in a reasonably active work
environment; the tremor and writing are causing some presentational problems
but my advice is to let relevant people at work know. I have made it a practice
to tell my immediate boss and staff; not for sympathy but for the simple
objective of keeping the team working and helping me by letting me know, sooner
rather than later, of any problems resulting from PD. Recently my boss, with
the CEO blessing, offered to pay for special coaching if it would help my
presentation (written and oral; so I'm looking for suitable training.
For similar reasons I would want to involve the kids; exactly what you tell
depends on their age but I believe that the family must function as a
supportive team.
I am taking Eldepryl and Artane (for past 3.5 years). Have you had any side
effects from the Sinemet? Do your drugs help your hand movement/writing?
 
Best wishes
 
Bob
Leeds, England
[log in to unmask]
 
AND NIC'S REPLY
Bob
Thanks for your letter.
I am also involved in presentations etc. I present courses
on Satellite Technology and do a lot of walking around
a globe, arm waving, and white board writing. The thing to
avoid is pointing on the overhead projector slide. The
slightest tremble is amplified horribly!
I did find that the tremor, which was mostly in my right
hand, improved with medication. Luckily I am left-handed.
I have to make an effort to project my voice and modulate
it. Especially towards the end of the day.
After my first course presentation (A whole week), I
told a close colleague who attended the course about
my PD. He assured me that he did not notice a thing.
I am perceiving a definite worsening of my PD over the last
1.5 years. My right hand is slowly becoming more and more
useless, (I hate repeat keyboards) and my left hand is also
starting to tremble.
I am telling my colleagues matter of factly about my PD
if the situation is right. This advice came from one of the
gentleman on the list.
Somebody on the list said that children are very attentive
about the behaviour of adults. How right he/she is.
My youngest son is very interested in electronics and in-
sisted that I teach him how to solder. Not wanting him to
end up like me, I warned him about inhaling the fumes and
that it will kill brain cells and cause an ilness called
PD. My oldest son (16) was listening and matter of factly
asked if that is what I got. I had to say yes!
As for side effects; after 1.5 years on Sinemet I am
starting to experience diskenisia towards the end of the
day. So far it has only been slight muscle twitching in
my upper arms, right shoulder and right calve. No hallu-
cinations. (None that I am aware off.)
 
Best of luck with your coaching
 
Nic
 
PS Why not communicate via the list? Someone might
benefit from our conversation.