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Barbara Patterson and helpers,
I think this network is absolutely wonderful and I want to thank you all
very much for the time and care you put into it on our behalf. I am new to
computers and typing so have not participated as I would like, but every
night when I can't sleep or lie still, I have something to look forward to
reading the letters and the time flies. It seems like family, in fact closer
than many, and to be sharing the lives, thoughts, fears and feelings of so
many special people is such a privilege, and yet absolutely stress free.
Keep up the honesty of open hearts and lives, I'm sure it is good for us all.
 
Barbara Yacos and others,
---Just a few things that may give you some relief from rigidity and RSL. I
find all these things helpful, especially at night to give a break from the
RSL torment when med. isn't working.
 
1. A hot spa and cold pool when desired--wonderful place to dump PD and RSL
I am so fortunate to have the use of both right next door and exercising in
water is so much easier.
 
2. Rebounder, like a mini tramp, helps me release tight mussels. Exercising
to music doing different movements with arms and legs and coordinating it
all with the music is fun when you are up to it. My equipment is called a
lymphasizer, and a book with progressive exercises goes with it. Also
information about the lymph glands and the remarkable cleansing effect
regular bouncing has on the body as fluid is forced through the glands.
Perhaps this is just advertising guff but anyway it makes me feel good. My
problem is partial incontinence which limits me considerably. This rebounder
also has a handrail attachment for the weak or unstable. Would like to know
if Mark Hirsh or others have any thoughts on this form of exercise.
 
3. A sonoid or similar massage vibrator pad and handpiece, -powerful one.
Gives me a break from RSL and tight mussels. I lie on the pad. These things
are expensive, try one out or hire, and see if it helps.
 
 
Travelling can be a real endurance test for me except when well medicated. I
battle with claustrophobic feelings and panic in small confined places. I am
considering the possibility of a pallidotomy at Loma Linda, but the long
plane trip from New Zealand!!! I often think of the man riding his exercycle
in the back of his van. Perhaps I could have one on the plane.!!!
 
You are a great bunch of people, keep writing, keep smiling, cry if you want
to, yell if you want, then carry on ,there will be a way, GOD Bless you all.
 
Currently on holiday for another week with my son <[log in to unmask]>
My usual email address is <[log in to unmask]>
 
Pam Barnett